Archive for category debateable
10 days and counting…
Posted by crusaderjennblog in Bible, debateable, Faith, Faith in the Midst of Illness, health, life, Living with Living with Multiple Sclerosis, Living with MS, Maintaining Faith, prayer, Relapsing Remitting MS, Uncategorized on December 5, 2021
Which means a week from Wednesday, my ENT is surgically removing the misbehaving glands of my parathyroid, or at least removing that portion of it. Which he’s been doing for other patients. For 30 years. For patients who share a similar list of symptoms. I’m anxious to be rid of the nasty culprit. That has flipped my life in topsy turvy fashion, only to hide itself from being a team player and resist showing its entire self in medical photos. Even the best radiology center could not obtain pictures that revealed, nor was their biopsy conclusive of what was going on. However, the ENT continued to view and review a few particular images of the one gland he could see out of 4 parathyroid glands, which told him to do nuclear testing which made my parathyroid light up. No, I was not lit up like a Christmas tree. But, what my ENT saw as it was plainly bright, was enough to order several more tests to confirm his suspicions and order surgery following obtaining those additional tests to be completed as soon as possible.
The right parathyroid gland had a sizable dark spot that proved to be an adenoma. Although benign, my ENT said tumors still cause disruptions in patient’s lives because where there is 1 adenoma, there are often 2 so doctors check for another in all the glands when they do surgery. Disruptions like a patient’s gate change and hobbling around instead of walking normally, like testing positive for osteoporosis at a younger than typical age for diagnosis because her body decided to leak calcium, like the bone density scan additionally proved that because of the calcium loss, that my bones are losing density and could potentially become so brittle that tripping once more on the stairs could cause a broken bone or a few plus another few fractures.
My Endocrinologist understandably prescribed a calcium replacement drug that I started taking in June, but my ENT, whom I initially saw in early October, because of adverse side effects, wants me to stop taking the drug asap. When I was given the prescription, I did research and despite the risk to lose teeth and calcium, while also gaining calcium and bone density, I filled the prescription because there are other drugs out there that offer positive effects, but they also yield comparable negative effects. Six to one, half dozen the other…
That said, I am keeping December’s appointment to remove some of, if not all the parathyroid.
One year ago…
Posted by crusaderjennblog in adoption, Babies, Bible, debateable, Faith, Faith in the Midst of Illness, family, Football, fun, Grace, health, Inspiration, invisible disease, Jesus, life, lifestyle, Living with Living with Multiple Sclerosis, Living with MS, Living with Multiple Sclerosis, Maintaining Faith, marriage, Marriage Encouragement, MS, MS Fight Club, Multiple Sclerosis, Nervous System, Neurological Conditions, news, prayer, Relapsing Remitting, Relapsing Remitting MS, Stress and MS, toddlers, trends to consider, Uncategorized, Women with MS on November 7, 2021
My PCP diagnosed me with anemia. A few months later, I received the hypercalcaemia diagnosis from my endocrinologist, quickly followed by an Osteoporosis diagnosis and put on a drug that might cause me to lose a tooth or two. I want to be off that drug ASAP. Despite all the cumulative crap I’ve been dealing with since ‘17, I finally have a sliver of good news to share.
My endocrinologist at my July appointment basically threw-up his hands and said he’s sending me to an ENT because my symptoms don’t match my numbers, but he believes there’s something indicitive of a tumor, although the thyroid and parathyroid ultrasounds and nuclear medicine tests revealed nothing. My downward spiral of symptoms going from a pretty healthy patient (minus the MS) to going straight down a toilet as my gait in just a few months became that of a 90-year-old trying to be purposeful with each labored step.
Last weekend at church, as I walked to my vehicle and I heard someone behind me and glanced back to see who it was. The older gentleman has always reminded me of my late grandfather and I stopped so he could catch-up to me. He said he had never seen me walk so slow. I laughed and asked if it was really that noticable. Then he went on to explain how he’d always seen me actively chasing the little ones all over and then said he was keeping me in prayer. I tend to be guarded about sharing anything specific, but last Sunday morning, I was confident that the Holy Spirit put it on my heart to share with a few people at church that I was scheduled for surgery December 15 for a pararthyroidectomy.
My endocrinologist did send me to an ENT, who after viewing all the pictures, labs and radiology reports, sent me to another ENT. Well that ENT sent me to his ENT, who is head of the ENT department at the university in town and his MA was able to schedule me for an appointment to see him a week later. I told B I was tempted to cancel the appointment because I was tired of wasting my time and being referred and referred to another doctor, and another doctor, etc. B asked me to keep the appointment and if I still walked away after the appointment feeling dislcouraged and like I wasted my time, then we would seek other treatment. Funny how I get so frustrated that I might have some extreme tendencies to for example, jump off cliffs because it just makes more sense to me to do something drastic , ya know) and then B has this level of discernment that can reel me in and produce peace with a few words.
Well that ENT, about 60 seconds into the appointment, said he had viewed and studied the pictures of my parathyroid and explained he believed at least one part, potentially two of the four-part parathyroid had tumors. I asked him how long he had specialized in ENT studies. 30 years. Only 30 years!! Then he said, “ I’ve seen this before, these symptoms and pictures . I’m confident if we do the 15 minute surgery to take out the parathyroid, that you should start feeling better almost immediately in the recovery room.” And with those few words, those tear ducts started filling up. You might remember that this girl does not cry…. her eyes sweat.
I am a work in progress…
Posted by crusaderjennblog in adoption, Babies, Bible, debateable, Faith, Faith in the Midst of Illness, family, Funny, Grace, health, Humor, in the kitchen, Inspiration, invisible disease, Jesus, life, lifestyle, Living with Living with Multiple Sclerosis, Living with MS, Living with Multiple Sclerosis, Maintaining Faith, Marriage Encouragement, Mommy’s musings, MS, MS Fight Club, Nervous System, Neurological Conditions, prayer, Relapsing Remitting, Relapsing Remitting MS, Stress and MS, Therapeutic House-pets, Uncategorized, Women with MS on April 3, 2021
I was blogging with somewhat of a purpose, but then I started analyzing and reanalyzing every stinking thing I do and do not do. I feel like a mouse trapped in a maze because I have been all over the map trying to figure out what my point is and answer the million dollar question of why do I do what I do? I’ve ultimately determined that my blog is for me. When I began blogging some years ago. I had hopes illusions of reaching a massive following for those with MS and/or their care-partners and even more of those who were interested in knowing more about being a Christ-follower in the middle of battling a debilitating illness and trying to mainfain faith and trust that God was still good when my Multiple Sclerosis was spiraling out of control.
And it was. I went from being for the most part able-bodied and independent to having to learn to self-catheterize when I couldn’t empty my bladder on my own. Using a cane became obsolete when I had to graduate to using a walker and finally upgrade to a wheelchair all within six months … and back then in October 2001 when I was struggling in my position and could no longer do my job as a consumer loan officer, my neuroligist said I likely wouldn’t see my 30th birthday, which was still some years away. I’m briefly explaining all that to get around to my point that I am going to blog for me because I enjoy writing. If anyone follows my non-nonsensical gibberish or rantings that get tossed around in my mind, then sure, I hope you enjoy yourself, are encouraged or at the least, can smile at something said, but don’t expect anything Nobel prize worthy. I’m writing for myself as it can be therapeutic. My story is not debateable because it is MY experience and I will not apologize for MY convictions. Consider that fair-warning.
As a Christian I do get mad, upset or annoyed when unexpected circumstances or events (like bad health) put a hiccup in MY plans. Really? Indeed. Because I am a control-feak extrordinaire, but am always trying to give up my own illusions of what I want and instead work toward fulfilling God’s plan for my life. I am a sinner. That’s not a badge, just a recognition that I am so far from being perfect. I have made some massive mistakes that years later, I still struggle with forgiving myself. I am a Christ-follower. There is a difference because many label themselves as Christians, but they don’t have a relationship with God, pray etc.
Be confident that that is not a judgement of anyone because only God knows an individual’s heart. I am actively seeking God’s will for my life on a continual basis and although I mess-up many times every day, I try to stay on-track. I have a lot of Biblical head kowledge, but am trying to get myself to having more heart knowledge. That is not a pat on my back for ‘intentions’ because intentions do NOT count or provide any points for scoring if that’s how you grade yourself. 2000 years later, Jesus still remains the only perfect human. Perfection is impossble, but God is always at work in people’s lives to refine us into who we’re supposed to be for his purposes.
Shaking it off
Posted by crusaderjennblog in debateable, Inspiration, Music Monday on January 19, 2015
This isn’t a ‘traditional’ Music Monday post as I’ve suggested I will share the first Monday of each Month. This link came across my email over the weekend and it’s too amusing to NOT share with y’all. I suspect that nearly everyone is familiar with Taylor Swift’s “Shake it Off.” With all the negativity and awful press that many officers receive, I thought this was an appropriate cop’s response to those bandwaggoners who maintain the ignorance that all cops are bad:
Thank you to all the men and women who’ve lost their lives and who continue to place their their lives on-the-line each day to protect and serve. Thank you also to the officer in the video who maintained a great sense of humor lip-syncing, “Shake It Off.”
To those who believe cops shouldn’t carry or use weapons, I ask if you think officers can realistically protect by carrying only non-deadly mace to spray at perps or protect using a tranquilizer gun to hopefully only stun a criminal, if the officer happens to gain clear access, while you’re being held at gunpoint, for example? Or, is a cop only obligated to protect you and not also protect him or herself?
~Jenn
But wait, there’s more!
Posted by crusaderjennblog in debateable, Faith, Inspiration, life, marriage on January 12, 2015
Oh the madness. It’s too frightening, dysfunctional, maybe even a bit entertaining to hear about this from my husband, B… Oh my poor husband… God clearly has reason for B working there probably because It takes a lot to rattle him and as you may recall, B is currently working for the Wannabe’s unorganized LED light company. You might also recall that OSHA is now involved and that they will be at the Wannabe’s office Wednesday to review the Wannabe’s permits, certifications (of which they have none) and to also interview current employees to understand if OSHA’s operation requirements are being met. The gentleman that was hired at the same time as B, quit today before noon as he’d had enough of the workplace insanity. My husband emailed me all of this during his lunch and said that Rinda is running around like a chicken sans head and desperately trying to make it B’s responsibility to locate the nonexistent document(s) that the Wannabes failed to obtain when they started their business almost five years ago. Remember, B was hired for sales. Well it seems that they’ve NEVER had or been required to have any of the necessary insurances or licenses or permits that are required for operating a business. Hmm, can you spell i-l-l-e-g-a-l?
I am guessing that after D suddenly quit this morning, everything will now fall to B and the unofficial employee/intern R to fix. Unless the owners can go back in time, they are in deep doo-doo. Coming from this company that knows only chaos and mismanagement, God opened the door for B to accept a new position that will begin next week. We are hoping and praying this will be the last and long-awaited position he must take before we move.
Bless D’s heart for sticking around as long as he did and I wish him the best.
.
Now OSHA’s involved…
Posted by crusaderjennblog in B, debateable on January 10, 2015
I’m sure you can’t wait to hear the moving update, but after everything that happened this week, we might be in Nevada for a bit longer, which has nothing to do with OSHA. But before I explain the OSHA portion, I should give you the update for B. B was originally hired early November for ‘sales’ at a local (Wannabe) LED light company. I say they are Wannabes because they somehow believe that they are one of the big-boys within their industry, like Philips or GE. On their embellished business cards, they publish factual information about factories with whom they do other business because the Wannabes do not have anything close to a factory as they are existing only out of a 1000 square foot commercial business office with no operating technical equipment. Interesting, isn’t that? The owners have made it plainly evident that although they’re in America, they think they can treat their few employees like slaves yelling at and hovering over them as they run the small business like one of their home-country’s sweat-shops.
The facility is not even operating at a practical level because they are so cheap. The wife explains it’s too expensive to run heat so the facility is always frigid which causes the employees to have to bundle-up and they also can’t turn-on lights because it’s also too expensive. Do you know how challenging it is to wear gloves and use a keyboard or use a computer without light? My husband told them he needs light and the wife provided a night-light for him to use the computer. Yes, seriously. B’s been grateful for the income, but this place is completely dysfunctional. He also said that the husband looks the other way from his wife’s unethical treatment of employees because he’s focused on the technical side of their business and doesn’t want to deal with humans, although he did yell at his wife a few weeks ago (in their native language). B said when they left the office a bit later he asked the intern what they were yelling about, to which the intern said that the husband told his wife, “Quit making everything so difficult for our employees!”
Let me introduce you to the black widow spider. These not-so-little mature arachnids with bodies about the size of an average-grape are clearly well-fed and all over the office/storage areas where my husband works. The wife’s critical thinking is severely lacking as her solution to get rid of these venomous spiders is to spray a bug-killer in the air, like when you spray an air-freshener (not directly on the spiders) will somehow eliminate the black widow problematic population for good. I became very concerned obviously because from what B has told me, there are a surplus of harmless males running around spooking everyone, but logic says that where there are males, look a little higher in the building’s corners and there you will realize there are also lots of deadly females.
The Wannabes hired my husband and another individual for ‘sales,’ but they are essentially gophers. This is the part where I finally explain OSHA’s involvement. I’m not a fan of big government, but thank goodness that someone has determined that businesses must maintain a minimum level of standards for business operations and treatment of employees. OSHA (Occupational Safety and Health Administration) says that employers must provide reasonable levels of safety and operating standards. Black widows are problematic for OSHA. Operating a cold office facility is problematic for OSHA and expecting employees to operate in the dark is also problematic for OSHA. B filed a complaint on the website and explained in detail what ‘s going on. A few days later, OSHA officials showed-up without warning at the Wannabes office. OSHA asked for copies of licenses and permits and B said they must have taken hundreds of pictures of all the nonsense. OSHA is returning next week to interview all employees. The intern is leaving next weekend to visit his home-country and my husband’s last day will also be next week because God answered another prayer for another job for B and then OSHA is also visiting next week. The owners may be shut-down next week also which was never the goal. We’re all for small businesses as we’ve been both an employee and owners of a small business, but there are rules. While the Wannabes were being so smug, they clearly needed to be reeled-in to be told to stop by officials to cease operating without humane standards.
Have you had a similar experience in a job? Share your story. What was your experience with a small businesses? Do you think small businesses should be given a pass because they are small?
~Jenn
Stop texting and pay attention – vehicles are deadly weapons too
Posted by crusaderjennblog in debateable, family, news on January 6, 2015
I’m not a fan of regurgitated information, but this situation continues to bug me so maybe I needed to vent a little. I don’t know that there’s anything to attribute what seems to be an excessive death toll on Southern Nevada roads to anything other than drivers who fail to pay attention. Are they talking or texting on their phones? Nevada DOT stated that there were 271 fatalities on Nevada roads in 2014. I remember one weekend in November, there were 11 alone. It’s disturbing that it’s as high as it is. I think the worst situation was just a few days before Thanksgiving when a grandfather took his 18-month-old grand-daughter for a walk in her stroller and was hit by a driver who fled the scene. Was the driver texting or was she DUI? We will never know.
My heart still goes out to the family of this grandpa who died at the scene of this accident. Locals were fired-up for a long time because the driver had the wherewith-all to recognize she ‘may have’ hit someone, but instead of calling 911, she retained an attorney. Was she texting or drunk? It does not get better at this point… She told her attorney she would turn herself in after Thanksgiving. Now, I’m just a simple blogger and I understand attorney-client privilege, but don’t your rights get tossed-out when ya commit a felony? And wouldn’t said felony make ya forfeit spending the holidays with people ya love? She turned herself in 8 days later, but almost promptly bonded-out. Now this story gets better because when she bonded-out, our local law enforcement in cooperation with U.S. Immigration officers were already gathering the required documentation of her expired Visa so they could rearrest the overly smug Bulgarian. As of the end of the year, she remains in jail and my hope is that she’ll be deported with iron branding on her forehead and limbs that says , “Work Visa Failure. Not Authorized to be on American soil.” Or something to that effect…
Too harsh or not harsh enough? What do you think would be the ideal punishment for a foreigner committing a felony in the United States?
~Jenn
Music Monday
Posted by crusaderjennblog in debateable, marriage, Music on January 5, 2015
For Christmas, my sister gave me a CD of inspirational, and meaningful songs. Copyright Nazis need not be alarmed as I’m not selling my gift. Being a kid who grew-up in the 80’s and as a kid who exchanged personally selected songs copied onto tapes for friends, I thought, I should do something on my blog relating to music because I’m always listening to music. A regular post meant that I would have venture out of my musical comfort zone. My musical taste is eclectic as I love jazz, classical, rock, modern rock, big-band, some new-age, christian rock, a small bit off county, although I typically revert to my favorite genres, which are rock, modern rock and electric with a limited amount of pop mixed in. Today for example, I began with listening to Audio Adrenaline, Billy Joel, Kutless, Tom Petty and U2. But maybe in the next 30 seconds I’ll scrap that list and listen to Frank Sinatra for no particular reason as my musical choices moment to moment are dependent on nothing.
I found several music players, but I really like Songza as the concierge provides you with several ‘activities’ or ‘moods’ from which to choose and base its musical offerings upon. For example, I selected ‘energy’ related music from a few rock choices and then further selected, ‘Eye of the Tiger: Confidence Mix’ and I’ll list a handful of the artists on the song-list: The Who, Guns ‘N’ Roses, AC/DC, (I’m seriously loving this list so-far) Rolling Stones, Peter Gabriel, Def Leppard, (still loving this list) Duran Duran, Billy Idol and I’ll assume this playlist will continue being awesome because the preceding list of artists are all well… you get the idea. I also utilized Pandora’s free music radio – choosing Classic Rock and I listened to another list of fantastic artists: Steve Miller Band, AC/DC, Aerosmith, Free, The Zombies and Bad Company, but I feel like after AC/DC the list sucked, although I stuck it out so you can see I’m being objective when I say that Songza offers a much better selection of activities or moods from which to choose and an improved list of artists.
http://songza.com/concierge/cocky-classic-rock/542db93ee352f80a4bc7fdc4/542dbb398b4818064490be8e/
I don’t want to mention by name a particular one of these per day keeps the doctor away electronics conglomerate that continues to create awesome toys under one product umbrella, along with the ability to save music collections under another umbrella, I’ll rename that song-saving portion Isongs – you know who I mean – and this resource has a fantastic system of saving music. That system is dialed-in and I love my collection of music being so accessible. Although, purchasing music under Isongs is much too expensive for my budget. Several years ago, when my husband located a discounted music resource, I joked with him that it’s our little music mafia site. Having said that, I’m not one of those who is against ‘The Man’ or anyone or company making money because Capitalism is a beautiful thing, but so is having more than one choice. Not being able to afford them is not their problem, so then I go to resource number two, which is affordable. I’m talking a song for 10 or 15 cents or $1.15 for a complete album, which is much more affordable. The only negative thing is that maybe what I want is not available right now compared to the twenty songs that are which makes a single Isongs purchase more justifiable. Here is the site where I find music for less…
With this monthly post (perhaps, it could become weekly), I hope to find new music to share with you, but I thought I’d start with the music players before I start reviewing what’s new.
What online music player do you use? What is your favorite type of music?
~Jenn







