Archive for category Grace

Strike 3 and the right parathyroid is outta here!

Said the Jenn 7 months ago in a blog draft immediately following the right parathyroid extraction surgery anticipating I would immediately feel better and immediately get to resume my routine. Yet, here we are and there has not been one noticeable positive change. I’ve retrogressed. Badly. So much so that in March I began to consider going to the Mayo Clinic as my last ditch effort to get fresh eyes on this situation as I’ve been determined to obtain answers. So, after filling out a ton of health background forms, I finally scheduled an appointment and reached out to my team of physicians to please provide whatever the Mayo Clinic needed. They agreed verbally, but when it came down to actually faxing my history to Mayo, they couldn’t be bothered. My neurologist, for example, got covid and almost died so unfortunately for patients like me, her priorities changed and following through on a simple commitment, in which she had a month to send the needed blood work treatment summaries information

The little culprit was taken out December 15, yet the last several months have provided an immense level of frustration. My ENT and I had placed so much hope in my health improving with the right parathyroid extraction. Imagine the disappointment of realizing I hadn’t improved. Of realizing the surgery was in vain. Of wondering if there are answers? And realizing this pile of horse-crap that I was handed might be the most and the best that the Jenn has in which to look forward…

Several months ago in March I began entertaining thoughts of going to the Mayo Clinic. Great idea, correct? I mean they’re world-renowned experts, right? My motivation was to get fresh-eyes on my situation. I have seen 3 Endocrinologists, 3 ENT’s, 2 Neurologists, 1 OBGYN (for that list of ongoing female issues) and a PCP and a naturopath in the last 12 months, yet not 1 had a fresh perspective or idea. Apparently they no longer encourage those physicians with fresh outside the box ideas like Dr. Gregory House to explore those anomalies which ultimately have a cause, but lack interesting substance or maybe it’s the ultimate motivation. Money. Perhaps doctors have written me off because of my health and that I won’t be around long enough to make it worth the effort.

The Mayo neurologist in Scottsdale definitely had a predetermined narrative. I shared everything that was going sideways with my health, when it began, etc and she had a pre- formulated prognosis. That I was experiencing PPMS. What?!? That still doesn’t make any sense. My regular neurologist had not even shared that as a possibility. Almost 28 years since the MS diagnosis in 1994, 26 of which have been symptomatic and under prescription treatment, so denial of this disease is not even in not even in the scope of possibility. Maybe your denial, but definitely not mine. Hypercalcaemia, osteoporosis, anemia, hyperthyroidism, Hashimotos, and then there are those pesky uterine fibroids that have no relation to PPMS that cause an obnoxious bleeding to excessive amounts of bleeding every month during my cycle for 3-12 days or however long my annoying Aunt Flo comes to visit. So how may I get answers to those questions, Mayo Clinic? But wait, expert Doctor, as I recall, you couldn’t be bothered to listen as you interrupted with your expert prognosis.

B and I packed-up and drove home with T after my appointment at the Mayo. We were both numb from shock, having anticipated a very different experience with hopes of driving away with positive outcomes and treatment options. I was not this round’s lottery winner.

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Here we go…

This happens every year. This year I think the inauguration of Autumn baking thoughts happened when our daughter and I were watching B carve Halloween Pumpkins for our little family. But dancing skeletons evolved into dancing sugarplums. Or perhaps it was watching Charlie Brown’s great pumpkin that evolved into musings of pumpkin bread Christmas.

I love the distraction of post-Halloween plans. I mean I put up a few decorations for Halloween, and I think some decor is fun for the Holiday, but I see some people do an overload of focusing on evil and finding that humorous. For example, each year the neighbor behind us picks some dark theme and decorates accordingly. This neighbor is technically not on our street. But the upstairs master bedroom has a deck/patio that can view our backyard. Some years ago, with the rere-lease of It, for Halloween, the neighbor hung a massive decorative sheet from his upstairs bedroom patio so everyone at the end of our street, or anyone who dared take a detour down our street would have a clear leave nothing to the imagination view of Pennywise and all his bloody-faced glory, having no regard for little ones who might be traumatized by seeing a glimpse.

Unfortunately, when another neighbor asked them to take it down and to keep in mind those little and innocent trick-or-treater’s eyes who should be protected from seeing that, the neighbor saw himself as a self-appointed messenger doing everyone a favor and said, “Mind your own business, besides kids will see it eventually.” Lord, have mercy! We had the displeasure of seeing that nightmare one Halloween, but thankfully on the flip side, those same neighbors have not used their back deck since then to hang anything.

Now, I am not trying to portay myself as an innocent. I read Stephen King as a teenager and an early twenty-something, but my time reading dark literature was satisfied after I finished It. My late Granny took all five of the grandkids (I am the oldest) to the circus every year as youngsters when Ringling Brothers were in town, so I grew up liking clowns. However, the novel about Pennywise changed my appreciation of clowns and they ceased being fun. That novel really changed my simplistic view because apparently, clowns are not always happy.

Who can explain the nonsensical ramblings of a Jenn? Certainly not I. And that may or may not have any correlation to anything, When all of a sudden, my little brain thinks snowmen, more specifically, giggling about Olaf’s sweet ignorance of being a happy snowman in summer. And then there’s the fragrance of cinnamon inspired goodies like baking gingersnaps, pumpkin bread or snickerdoodles! Yum! Maybe it was because we had a short ‘bout of cooler temperatures, that reminded me of winter, though I’m about three weeks early… which then inspired me to think snowflakes again and cause me to bake because why wouldn’t I associate gingersnaps with autumn? They go together. Then winter solstice and just a few days later Christmas? Or maybe it was when my 2-year-old handed me a book to read her – the story about how that green thief who stole Christmas.

Praise God for all these distractions with my surgery coming up so there’s zero opportunity to fixate on worrying when I know God’s in control.

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One year ago…

My PCP diagnosed me with anemia. A few months later, I received the hypercalcaemia diagnosis from my endocrinologist, quickly followed by an Osteoporosis diagnosis and put on a drug that might cause me to lose a tooth or two. I want to be off that drug ASAP. Despite all the cumulative crap I’ve been dealing with since ‘17, I finally have a sliver of good news to share.

My endocrinologist at my July appointment basically threw-up his hands and said he’s sending me to an ENT because my symptoms don’t match my numbers, but he believes there’s something indicitive of a tumor, although the thyroid and parathyroid ultrasounds and nuclear medicine tests revealed nothing. My downward spiral of symptoms going from a pretty healthy patient (minus the MS) to going straight down a toilet as my gait in just a few months became that of a 90-year-old trying to be purposeful with each labored step.

Last weekend at church, as I walked to my vehicle and I heard someone behind me and glanced back to see who it was. The older gentleman has always reminded me of my late grandfather and I stopped so he could catch-up to me. He said he had never seen me walk so slow. I laughed and asked if it was really that noticable. Then he went on to explain how he’d always seen me actively chasing the little ones all over and then said he was keeping me in prayer. I tend to be guarded about sharing anything specific, but last Sunday morning, I was confident that the Holy Spirit put it on my heart to share with a few people at church that I was scheduled for surgery December 15 for a pararthyroidectomy.

My endocrinologist did send me to an ENT, who after viewing all the pictures, labs and radiology reports, sent me to another ENT. Well that ENT sent me to his ENT, who is head of the ENT department at the university in town and his MA was able to schedule me for an appointment to see him a week later. I told B I was tempted to cancel the appointment because I was tired of wasting my time and being referred and referred to another doctor, and another doctor, etc. B asked me to keep the appointment and if I still walked away after the appointment feeling dislcouraged and like I wasted my time, then we would seek other treatment. Funny how I get so frustrated that I might have some extreme tendencies to for example, jump off cliffs because it just makes more sense to me to do something drastic , ya know) and then B has this level of discernment that can reel me in and produce peace with a few words.

Well that ENT, about 60 seconds into the appointment, said he had viewed and studied the pictures of my parathyroid and explained he believed at least one part, potentially two of the four-part parathyroid had tumors. I asked him how long he had specialized in ENT studies. 30 years. Only 30 years!! Then he said, “ I’ve seen this before, these symptoms and pictures . I’m confident if we do the 15 minute surgery to take out the parathyroid, that you should start feeling better almost immediately in the recovery room.” And with those few words, those tear ducts started filling up. You might remember that this girl does not cry…. her eyes sweat.

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Ongoing Variables

Prior to the five day Lemtrada treatment in ’16, a team of lab consultants and vampires phlebotemists took eight vials of blood along with the contents of my bladder to establish my base-lines for what my normal numbers were. My thyroid, and red and white blood cells were all completely within a normal range in that analysis two weeks prior to the Lemtrada commencement. Even with Multiple Sclerosis, all these were very much within the range labeled “normal.” I’m explaining this because the following will be somewhat of a brief meaning of the physiological changes that occurred following treatment. We knew of the potential side effects that could happen and from reading the disclosures, there were definitely adverse side effect occurances. With the information that MS could be eliminated through the treatment, I saw the treatment as a calculated risk.

Well, I became the Lemtrada anomaly. My neurologist received reports following those monthly labs to show how my body continued to respond to the treatment. About five months post Lemtrada my thyroid started showing things were changing so off I went to an endocrinologist who put me on medication to control the overcompensating hyperthyroid and a few months later, it became hypothyroidism for my underactive thryoid. Apparently my thyroid couldn’t make up its mind.

In the middle of all this the endocrin diagnosed me with Hashimotos, with vague instructions to stay away from gluten. I thought for a second that that was going to be easy to stay away! How silly was I? Once I researched gluten and found that it was in bread – I love baking bread – and that gluten is in so many of my favorite things {read as nearly everything} many candies I enjoy that include red licorice. But then once I became intentional to stay away from gluten for a month, which began in February 2019, things changed. Those chronic gut aches finally ceased. Over time, gluten-free has become more of a staple in grocery stores as gluten-free snack options are more available. While all these changes started in me and I needed to create my new normal , I was delighted to discover gluten-free snacks in stock with Amazon Prime. Did I mention Gluten-free chocolate covered pretzels?!?! Yum! Simply delightful.

Then a couple months later, the medication changed back to control my hyperthyroid’s overactive antics, but that didn’t go well but after all the nonsense, my numbers finally leveled-off. Then, of all the obscure causes why I didn’t respond well to the prescription, my endocrin said I was allergic to the dye in the prescription pills, so she wrote the Rx in such a way so my pharmacy filled the Rx with non-dyed pills. But then my encodcrinologist moved to Sweden and I was not responding well to the medication anyway so I opted to elimininate the idea of finding another endocrinologist. I didn’t really like her. My first appointment with her was weird. She asked many questions about when and how the MS was diagnosed and in that I explained that auto-immune was in my genes so it was definitely in my genetic make up to rear it’s ugly head. The doc’s take-away was telling me that I missed my calling to go to medical school and figure out why my MS was affecting me and why auto-immune put a target on my family or why Lemtrada screwed up my physiology. Apparently her playbook for me was to discover why I should’ve become a world-reknowned doctor who discovered a cure for MS. I’m not kidding or exagerating about one iota of this.

I would love to say I fired that doc, but timing was such that when I decided to not see this endocrin any longer, she went MIA over-seas. I took the opportunity to be in control, which I should’ve done at the beginning of all this nonsense and researched thyroid supplements and those most highly rated on Amazon. I read many reviews and ordered one supplement. I took for a couple months, but then after I decided that chronic diarhea, even as a temporary side-effect really sucked, I ordered a different highly rated supplement. And “Behold! No chronic diarhea? We had a winner!” Said Jenn after taking it for a month with no unwelcome side-effects. So with the supplement, I felt decent and have continued taking it for a few years now.

Then last September, my (now remember I had to agree to monthly labs for five years following Lemtrada.). Things started changing again with my physiology and my neurologist called and asked me to take a copy of my labs with me to see my PCP. What’s changed this time? I started feeling sick in mid-September ’20. Those labs said I was anemic. Apparently, as of February I’m no longer anemic, but if that’s true why am I still experiencing heart palpitations? Coincidentally, I just felt lousy. This coming December, it will have been five years since Lemtrada ended, but changes were still happening. My internal system has allegedly flushed the toxic chemical cocktail from my body, but things are going awry. For a couple years I put reading my Bible on hold while I was working through my anger at God for allowing our first foster placement after two years with us from birth, be sent to an unknown distant family member in St. Louis.

Perhaps the stress from that situation was another culprit for making my health go sideways. Whatever is going on, I feel like I’m in a fight for my life right now. My new Endocrin tested me for a list of about 25 things in December. A few of those things included conditions related to osteoporosis because with my initial intake appointment with him, he looked at my prior bloodwork and saw that in my urine, there is a high level of calcium, which isn’t normal. My body is leaking calcium. I’m too young to have osteoporosis. Which means I will need surgery to put a stop to this and have my parathyroid removed. I sought a second opinion and that doctor was in agreement that the parathyroid is indeed the problem child. I have an appointment for a bone density scan which should confirm the need for surgery and with the parathyroid removed, it should put a stop to the “calcium leak.”

https://youtube.com/watch?v=X1eMZWiOJ0a0&feature=share

Last June I began reading my Bible again and it’s timely that I am reading Job in the middle of my own health nightmare. God is faithful. I’ve seen and experienced healing in myself and others in years passed. But I’ve doubted him so much and prayed for my own end in order to to be rid of what I know will likely be temporary pain and discomfort. The pain and chronic discomfort that I’ve felt in the last six months is like nothing I’ve experienced before. God healed my MS in 2005. He healed my Dad’s cancer and continues to keep it away. So how dare I doubt his goodness?!?! One of B’s clients has a mom who is also a believer and she told my husband she had a dream about me and that she received a word that I would be healed. But like the Isrealites and their chronic complaining through the desert for 40 years for an 11 day journey, I have to keep my faith and remind myself that like Danny Gokey’s song, I “Just Haven’t Seen It Yet.” The light at the end of the tunnel has become faint, but I have to have faith that my struggles have not been in vain.

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I am a work in progress…

I was blogging with somewhat of a purpose, but then I started analyzing and reanalyzing every stinking thing I do and do not do.  I feel like a mouse trapped in a maze because I have been all over the map trying to figure out what my point is and answer the million dollar question of why do I do what I do? I’ve ultimately determined that my blog is for me.  When I began blogging some years ago. I had hopes illusions of reaching a massive following for those with MS and/or their care-partners and even more of those who were interested in knowing more about being a Christ-follower in the middle of battling a debilitating illness and trying to mainfain faith and trust that God was still good when my Multiple Sclerosis was spiraling out of control.

And it was. I went from being for the most part able-bodied and independent to having to learn to self-catheterize when I couldn’t empty my bladder on my own. Using a cane became obsolete when I had to graduate to using a walker and finally upgrade to a wheelchair all within six months … and back then in October 2001 when I was struggling in my position and could no longer do my job as a consumer loan officer, my neuroligist said I likely wouldn’t see my 30th birthday, which was still some years away. I’m briefly explaining all that to get around to my point that I am going to blog for me because I enjoy writing.  If anyone follows my non-nonsensical gibberish or rantings that get tossed around in my mind, then sure, I hope you enjoy yourself, are encouraged or at the least, can smile at something said, but don’t expect anything Nobel prize worthy. I’m writing for myself as it can be therapeutic. My story is not debateable because it is MY experience and I will not apologize for MY convictions. Consider that fair-warning.

As a Christian I do get mad, upset or annoyed when unexpected circumstances or events (like bad health) put a hiccup in MY plans. Really? Indeed. Because I am a control-feak extrordinaire, but am always trying to give up my own illusions of what I want and instead work toward fulfilling God’s plan for my life. I am a sinner. That’s not a badge, just a recognition that I am so far from being perfect. I have made some massive mistakes that years later, I still struggle with forgiving myself. I am a Christ-follower.  There is a difference because many label themselves as Christians, but they don’t have a relationship with God, pray etc.

Be confident that that is not a judgement of anyone because only God knows an individual’s heart. I am actively seeking God’s will for my life on a continual basis and although I mess-up many times every day, I try to stay on-track. I have a lot of Biblical head kowledge, but am trying to get myself to having more heart knowledge. That is not a pat on my back for ‘intentions’ because intentions do NOT count or provide any points for scoring if that’s how you grade yourself. 2000 years later, Jesus still remains the only perfect human. Perfection is impossble, but God is always at work in people’s lives to refine us into who we’re supposed to be for his purposes.

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Learning Humility

Over the course of twenty-two years with MS and its retrogression through abilities like my choice to temporarily give-up driving at the tender age of 27, only to again be able to reclaim it a few years later -albeit with some hesitance, #loveindependencebutIvalueyoursafetytoo, and then the need to self-catheterize in public restrooms #hateunsanitarybutnecessary was mandatory because when you gotta go, always go with confidence.  And then there was the necessity of needing walking help with a cane or walker and dealing with the loud and ignorant judgmental heckler’s (stangers) comments, let’s call a spade a spade, #grumpyoldcodgers being bullies simply jealous I obtained the last handi-capable parking spot, or the accusations that I “faked” using various devices for good parking, but the most influential, yet one of the most difficult to accept component was accepting rides to appointments from well-meaning #friends and #family.  

These were all contributors that #God used to help me absorb the much-needed lessons of being humble.  #lessonoffaith Thank you, Lord for being patient with me.  #godnevergivesuponus  Thank you also to friends for your help and thank you, #Jesus for teaching me to learn to simply appreciate a friendly act of service.  I don’t recall just who interrupted me in one of my misguided tirades about people boosting their own egos to offer to “help the cripple.”  Was I that bad?  I know it’s hard to believe, but yes, Jenn is #stubborn, and I was likely worse than I imagined because it was in my head that I believed most people were fake.  

And I often revert to speaking about myself in third-person when I get frustrated.  #oldhabitsdiehard  To mentally turn each offer to help, into an ego boost for themselves.  A lesson I’ve been learning is to accept things at #facevalue instead of trying to read between the lines for some (but likely not there) hidden meaning.  Talk about being a mental-case.  I might most definitely resemble that.  Ever heard, ” When you worry about what others think of you, you’d be surprised how little they do.”  Whoa.  So as much as I think people want to make me feel a certain way, they don’t. I ultimately control how I feel and most people have better things to do than manipulate ways to be condescending.  Again-whoa.  Jenn’s learned it’s much easier to believe an offer is sincere.  If it’s not, that is not my problem because I should not be required to further analyze anything.   

I detested being required to depend on others to #chauffeur me to doctor appointments, and because of the increasing menu of my many worsening #relapsingremittingMS issues, there were many of those to see various specialists like a speech pathologist to assess learning to speak again, a physical therapist to help me re-learn to walk, a urologist to learn how to safely #catheterize in an emergency, just to name a few things.  Because of the many basic abilities I had taken for granted, the lesson to give-up stuff and be forced to accept and later embrace a new practice in order to get what I needed was somewhat lengthy.  You can imagine teaching an old dog mule-like human some new tricks.  

Yes, those first couple of years being disabled before turning 30, even I was a pain.  You better believe it.  I was that old dog.  #stubbornasamule  Although it probably took longer than was necessary since I was so resistant to accepting help for so long, but once this girl got-it, it became easier and easier to just say, “Yes, I appreciate your offer to help and thank you very much.  What day would be best for you?”  Another challenging situation was when people offered to buy or prepare us a meal, drop it off and expect nothing in return.  Because of my limp and gimpiness, I am a klutz and when I shattered my ankle seven times slipping on the driveway in ’07, several brought us meals.  Again, thank you for helping in a big way.  But, I very very briefly got back in the mode of analyzing people instead of just saying, “Thank you,” but then quickly realized this was a meal I could in no way prepare for B #husband #love before he came home from work.  The moral of the story is accept someone’s offer to help and don’t forget to say thank you and send a thank you note.  Those became my new rules.  Much easier.  And no further analyzing.  Whew!  This girl’s brain needs a rest.  But today, I’m asking for grace while I’m getting the I-V full of #MS treatment as I try to coherently share my thoughts.  Thank you in advance.  

Speaking of friends, there’s a generous couple from #church who have offered to provide dinner for us as I go through this #Lemtrada #MS treatment.  Thank you to friends like this who “get-it.”  Instead of of putting the responsibility on us to, “Just let you know if we need anything.” This couple called yesterday and asked if they could bring us dinner tonight.  As a matter of fact, that is precisely how such an offer should happen.  Those are the best kind.  It’s humbling that people would do this for us.  It might seem silly that I really cannot do much, but I cannot go anywhere or even try to exercise while the I-V is attached so here I am several hours a day getting treatment.  Maybe compare it to being on a long flight, sitting several hours and also being at the doctor’s office for vitals monitoring.  

                                                           💙💚💙  GO HAWKS!  💙💚💙

  

 

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Too big to not share

With everything going on and my ever increasing #MSinducedmemoryproblems, I have to share this while I’m thinking about it or “POOF!”  it’ll be gone and I’ll forget again because #MultipleSclerosis is playing hardball with my short-term memory retention these days.  We’re at T minus 10 days until I start the #Lemtrada round one treatment.

Monday morning last week, B #husband #love texted me shortly after he got to work to say that he had some big #news and would share when he got home, but I was busy with the #baby #love and then getting #cleaning stuff done around the house #clean #addict and then POOF, my husband’s text was forgotten!  That thought was gone and I didn’t think twice about it.  I had dinner ready and Baby was fed when B came home, so he changed his clothes #relaxation and then we immediately said a dinner blessing.  He was anxious to share whatever it was and I’d forgotten about the big news so I hesitated and put the burrito #dinner back on the plate.  At his job, B’s an #art #mentor for mentally handicapped students and a student’s mom had called first thing that morning to let the staff know her son would be home sick that day, but as long as B answered the phone, Mary said she had something to share with him.  She shared with B that a few days before, #God had placed on her heart to fast and #pray for me, but she didn’t know why.

Now, my #health is generally not a topic of conversation for either of us with strangers, especially for B at work, where unless I’m experiencing a symptom like vertigo that has required him to be home to care for Baby, other than a few people, no one really knows the rough issues with my #relapsingremittingms that rarely require him to be home, thankfully.  B said that at one point, he had shared with Mary, who is also a #Believer, my testimony of walking again #miracle after being in a wheelchair for years.  You must remember I do not cry, but my eyes occasionally sweat, mostly from allergies #denial.  B then shared that a few days after fasting and praying for me, God told Mary I was going to be #healed.  Initiate single eye-sweating program.  I felt very #blessed that a person I met only once, might feel a burden to fast and pray for me, but I said nothing, then he repeated, “Jenn, Mary said God told her you’re going to be healed soon.”  Level-up.  Initiate inadvertent dual eye-sweating sequence…

So, in no way did I believe I could deserve something so big since I already received such a significant blessing years ago allowing me to walk again #amazing.  It’s like I think my blessing bowl can be filled only once in a life-time.  It’s definitely a process to consistently stop negative thoughts and immediately redirect and recognize those thoughts are inspired by the enemy telling me, “You don’t deserve ___.”   I must stop such thoughts many times each day.  My husband is fantastic to gently remind me that #Godismerciful and doesn’t use a pay-for-play method of forgiveness or blessing.

What?!?  But I already was healed from having to depend on a wheelchair 11 years ago!  #miracle  Oh no-those sweat-glands in my eyes failed in a big way and my eyes began sweating profusely.  I was confused how I was deserving of such a magnificent #blessing. I have a performance-based blessing mentality so I’m actively working to clean-out many years of negative internal-dialogue.  I am still working toward recognizing performance based blessing in no way resembles my merciful and loving Savior.  #nonsensestopshere I must be conscientious to make sure I do not repeat those methods with our foster #babyblessing,  who my husband and I very much hope to #adopt.

I always use speaker-phone so my hands are free to do other mindless tasks like fold laundry while I “chat.”  Unfortunately though, while my phone was on speaker a few months ago, B overheard everything loud and clear so there was no misinterpretation of conversation lecture verbiage about consequences I’m apparently still suffering, making B get a sour taste of that performance-based affection.  “Now I know why you operate with a pay-for-play mentality.  I’m so sorry, Sweetheart – I might get it now.”  Things might have the ability to stick and set the tone for one’s dysfunctional internal dialogue for years, but it really is changing.  #praiseGod #Jesussaves

I’m excited because as this Lemtrada treatment situation has unfolded over the past few months with God opening doors for my grant application to be immediately approved for funding the treatment, my faith steadily increasing and doubt finally gone and being at peace that although risky, Lemtrada is in fact the vehicle through which God will deliver healing as Lemtrada is the only treatment able to heal previous MS damage.  #peacethatpassesallunderstanding  This is exactly where God is guiding me and with healing, I believe He’s also preparing me for great things.  Lord, I’m ready now.  #amen

 

And of course, GO HAWKS!

Jenn

 

 

 

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Baby-Girl is 9 months

And in mid-February, when we were given custody of a precious seven point something baby, I swore to B and everyone else that I could easily care for and do this #foster-parenting thing without falling in love because Baby Girl would be with us only a couple of months.  Which wasn’t enough time to #fallinlovewithbaby I didn’t birth.  Right?  And besides, it’s plenty of time for Baby-Girl’s mom to make-up her mind to get her act together and get her baby back because she can’t stand that someone else is loving and raising her daughter.  Right?  Right.  How cocky?  Ignorant?  Ridiculous?  All of the above, was I to think I had it all figured out.

How could I be so naive in thinking being home with her all day, every day, to take care of and provide for her needs and with each task look into her gorgeous eyes to smile at her, hold bottles for her, change diapers and tell her sweet-things about herself, like how beautiful and precious she is many times each day, would not allow us to bond?  #mommybabybonding  Right?  Right.  Come on, Jenn!  Everyone, please do me a favor and do not let me pass “Go” or collect $200 because I was an imbecile for thinking the way I did.  But, I really did believe what I believed, that I could do this without becoming emotional or attached.  Step-aside #Girl-Wonder.  I was successful in referring to myself as Miss Jenn for a few months(what the two and three olds called me) when B and I taught Sunday School and how those munchkins in our little class referred to me.  But then Mother’s Day arrived and B said, “You know you’re Mommy to her, Jenn.”  And I was like, “Um, no, we’re waiting for a boy so I can’t be mommy until we get him.”   But then recognition dawned on me with B’s words and I finally got it.  That for our baby girl, I am Mom.

Those snapshots with which God provided for me more than 18 months ago, urged B and I to #pray and later go through the licensing process of becoming foster-parents to adopt a little boy. Except I tawt I saw #Tweety Bird, thought I saw, assumed based on the limited snap-shots, that I really envisioned a little boy.  With those repetitive snapshots of me with a child, B with the same faceless child and us with the same curly-haired, but faceless lighter-skinned child, I kept seeing a faceless three or four-year-old and what I thought was a boy with non-descript clothing and brown curly hair and assumed we’d be sharing our home with a little boy.  Silly me.  The first clue should have been when our licensing social worker called us in February to see if we’d be willing to take a baby-girl?  Read that as God’s timing, but I still didn’t get it.   We agreed because we thought it would be great experience to care for a baby, although I personally didn’t believe a baby girl would be with us for very long while our real child (unknown boy) was waiting for us somewhere out there #AmericanTail.

And then the real eye-opener happened October 5, God gave me a clear thought I believe was absolutely from him because I never would have considered such an absurd thing on my own, “What if you were mistaken in your interpretation of those snapshots, Jenn?” asked God.  What?!?  Mistaken?  Me?  I say absurd because I might resemble one of those people who can become completely absorbed in my limited tunnel-vision.  So, here’s the thing…  I was looking at Baby-Girl, aka Butter Buns, aka several other cute nick-names and really studied her as she was trying to crawl, when the undeniable hit me.  #Lightning  “What if I was mistaken?” thought came to mind, courtesy of my merciful Savior because I am stubborn and it might take me a few tries to really GET something. “Think, McFly, Think!”  #BacktotheFuture  Baby-Girl is lighter-skinned with brown, curly hair…

Thank you, Lord for opening my eyes.  Because as I said, I never would’ve considered without inspiration from someone higher than me that we already had in our custody, the baby in those snapshots.  Yes, contrary to the fantastic perception my devoted readers already have of my unshakable confidence [read as mule-like tendencies], I might resemble one who struggles with tunnel-vision.  Because no one and by no one I mean I don’t get the important stuff wrong.  Well, not very often anyway.  Welcome humility and I’m going to need your help here for an indefinite residency.

Do you ever think you have it all figured out, only to receive a figurative slap upside the head and find, you might have been wrong?

GO HAWKS!

Jenn

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A Test of Faith

I’ve mentioned that I have MS, but be confident that I only mention the relevance again because I realized as I’ve blogged, I’ve failed to explain not only why I believe in God and have a relationship with him, but also why I continue to believe.  God has stretched my faith over the years, but most noticeably during the last two.  The first time was over a decade ago when MS side-lined me by placing me in a wheelchair.  Back then, If I wanted to remain an active part of society, a wheelchair was mandatory for outings like a trip to the mall or for supporting all my family and friends who obtained donations for and walked with supporters of the annual MS Walk.  Being forced into an uncomfortable position was humbling.  I hated asking for help, but my circumstances muscled me out of my comfort-zone and created a much-needed level of humility. 


I was in a wheelchair for a few years learning to give-up everything to God when I stumbled upon information that God allowed to be used to improve my health and essentially over time placed my MS in ‘remission,’ which was faith test number one.  I was grateful that God allowed me to find the information, but it didn’t take me long to start taking everything for granted, like the awesome miraculous healing that I received, like the ongoing physical help I received from family and friends when they pushed my wheelchair, like the encouragement God provided when I was in my pit of despair.  Within a year of God healing me, I failed to make my personal devotions and prayer time a priority and elevated myself to being too busy to make time for God.  I became both arrogant and ignorant for esteeming myself so highly and thinking that if I hadn’t located the healing information, MS still would have gotten better because I’m Jenn and I’m…awesome.  Shame on me for over-esteeming myself when I should have praised God for a priceless blessing!

Fast forward several years to 2012 when we were in the process of buying a home in Nevada and it was shortly thereafter, that my husband and I began having marital issues.  All of this background is necessary to explain that God was again humbling me and drawing me back to him because I had placed God ‘on-hold,’ but was beginning to recognize that by not allowing him to guide me daily, I made unwise decisions.  Also by not allowing God to provide my path, I became as much part of the ‘problem’ as I had determined my husband was.  Could I get another shame on me?!  It was plainly obvious my husband was making bad decisions, but I could have just placed my faith in God, that the Holy Spirit would convict my husband instead of Divinely anointing myself to be God’s chosen messenger to convict my husband.  I should have asked God to guide me in the situation because although I was late getting on board with GOD‘s plan, He worked through both of us and is continuing to work in us.  And praise God because it was only because of his Divine intervention, obviously minus my misguided help, that we are still married and committed to remain that way and work through issues instead of giving up and becoming another statistic, which was faith test number two.  


I’ll fast forward again to when my husband’s favorite job-to-date was eliminated as the organization could no longer afford to employ a graphic designer.  It was almost immediate after losing that position that he felt God telling him that we should return to Washington.  My husband sharing that piece of news was the best thing I’d heard since we moved to Nevada because it was an answer to prayer.  I’ve never felt settled in NV and with each challenge presented, I felt it was ‘just another’ consequence of not seeking God prior to moving a few years ago.  If we had waited for God’s leading, we likely would not have moved instead of being lead by our own selfish desires to get away from the surplus of Pacific Northwest rain.  So, since last October, moving and my husband locating work has been in our daily prayer.  He’s applied for many positions between where we live in NV and where we want to return in Washington and there’s been little response.  My husband has built a very strong resume, but God hasn’t opened any likely doors that would accommodate his background or even any unlikely doors for positions he could perform with little or no training.  The last six months have created a stronger faith in God for both of us because when his unemployment benefits run out, that’s it.  As in the income is final, at which point we’ll be dependent on my small disability income.  As this is a tad scary, our current set of circumstances has enveloped us in faith test number three.    


One may wonder why I don’t work.  My skill-set within the financial industry became null and void when those attention-to-detail related skills were what ultimately required me to take a short-term leave-of-absence only to cause permanent disability.  My husband is the bread-winner and actively pursuing employment every day.  During the last six months, while he’s been applying for employment,  I’ve been packing the house.  I’ve been boxing-up our belongings because the fact is that in April, our income is final with a limited number of days before we’ll have to be out of our home.  Have I mentioned this is a tad scary to be packed-up with nowhere to go?  Our home now is bare-bones with only the empty larger pieces of furniture remaining in the house as they’re too heavy for us to move to the garage.  Shelves, drawers and nearly all cupboards are packed with only the essentials available, which means that at any point, we’re probably close to 98.5% ready to load a moving-truck and start the caravan north.  My husband’s final unemployment benefits arrive next week and our six-month safety-net will also be dried-up, which also will nearly empty our savings.  And there is nothing indicative that allows us to start creating an action-plan.  I think a typical person would be in the midst of a severe panic-attack and scared-to-death of our situation, but as the drop-date has hovered closer and even closer, God has given both of us a tremendous sense of peace.  The adage that ‘God meets you where you are’ has been confirmed over and over through this and more recently, even more consistently.  Yes, we’re clear that people think we’re ignorant and foolish for believing in an unseen God.  However,  understand that because God has already proven his faithfulness in healing my MS, in healing our marriage and providing an abundance of answers to prayer for family, not to mention providing significant guidance throughout the Bible(not that He needed to), combined with the fact that we are doing what we’re supposed to in seeking him and praying for answers, that we have no reason to doubt God’s promise to provide a break-through.  Jeremiah 29:11 says, “For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.” 

We also believe that God has allowed my husband to remain unemployed so that we would have the time to get into more positive habits of daily devotions and prayer time together, of which we’ve taken full-advantage.   Our daily devotions and prayer time has further solidified our spiritual walks.  Now, if my husband played video games and did nothing of value each day, then there would be a problem having faith while doing nothing that promoted faith, but as that is not the case, we remain faithful in believing that God will soon provide the financial means to get us back to Washington, since it’s clear that’s where He’s guiding us since He has not opened a door to work in Nevada.  Each day we see daily email scripture subscriptions and at church every week, we hear a much-needed message that relates to waning faith, which is ultimately enough to help us stay the course and energize us to ‘keep the faith’ another day as we continue to trust in God.  Back when I was learning to trust in God, the following became my ‘go-to’ source of encouragement and still remains, Isaiah 40:31, “But those who hope in the Lord will renew their strength.  They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.”  Trusting in God also means trusting in his timing.  God is never late and He is always, always on-time.   We have placed our trust in God about this entire situation and look forward to and are praying that God would be preparing us for whatever blessing is on the horizon.  


  

 

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Merry Christmas!


Yesterday, we made plans to visit Las Vegas’s hotels that display extravagant and beautiful Christmas decor.  We set a time to get-together with another couple (my husband’s pseudo-family), but we got distracted and failed to call the other couple in a timely fashion to let them know we were running late.  My  husband asked me to call and warned that there’d be “drama.”  I called and apologized and laughed explaining that we didn’t realize it was so late, but before I could even finish an apology, the wife interrupted by unleashing a tirade about ruining their day, ruining their plans, etc., then hung up on me.  Wow!  Silly me, because I thought the practice of hanging up on someone, was, “So junior high!” but this retired woman is nearly a half of a century late for bringing-back the immature behavior.  

But……. that wasn’t the first time.  About eighteen months ago, the wife (very much a stranger at the time) pulled the same stunt, yelling at me, unleashing her verbal venom that began when I returned her call.  Her prior message neither indicated it was urgent or life-threatening, so when I did call her back within a couple of days, she began her tirade with, “You’re so selfish, Jennifer for not calling sooner, you’ve always been selfish and it’s no wonder why people think you’re selfish.”  Clearly, she has control issues in that she does not maintain any effective filters or maintain self-control or consideration for the damage she causes during her rantings.  Bless her daughter-in-law who explained that they take the high-road because it costs to much to be involved when the wife is mid-metamorphosis into Wifezilla.  No wonder they limit their contact!  We’re not even actual family, so my guess is that everyone gets their “fair-share” of the woe-man’s mean-streak.    

Return to present when my husband heard yesterday’s call because it was on speaker.  He got an angry message from the husband shortly after Wifezilla ranted at me and said he’d wait a day to call.  The whole thing should not have been a “thing,” but the way she yelled and spewed, one might think that the world ended.  Good grief – it was a plan to see some Christmas lights!  I received a call this morning from the husband, saw who on caller ID, but before I answered, I prayed and asked God over and over to allow cooler heads to prevail.  I was never angry, just a little irritated that this was even an issue in the first place.  Our call was friendly and he said they’d cooled off (thank you, Lord) and when he paused, I took the opportunity to express that our intent was never to “ruin everyone’s day,” we were distracted, I was sorry for not calling sooner and that I hoped we can all get past this.  I am thankful that the husband called and used clear thinking in this situation because Wife’s habit of dramatic histrionics is over-the-top and unnecessary.   

I place emphasis on the point to avoid getting caught up in irrelevant, nonsensical situations like this.  I learned from various experience in the past, that stress is very much a catapult to an MS retrogression.  Once I learned to not allow various stress triggers into my thought-patterns and over-all-life, my health improved.  It became simple to “not play a culprit’s game.”  Yesterday, when I didn’t react to the  woe-man’s theatrics, I did myself a favor and at the same time, I did not give in to the not-so-enticing temptation that Satan dangled before me, and therefore honored God.  I did take the high road and that isn’t to praise my own self-control, but to convey the necessity of recognizing one’s stress-triggers.  Learning to recognize and control these triggers by walking away from them or choosing to NOT engage in them, is essential especially for family / friend gatherings.  Remember gatherings are supposed to be celebratory and by giving in to engaging in nonsense, we take attention away from the focal point.  

Because I am away from my family in Washington through 2013’s holidays, I am so grateful for the years and years of family birthdays, Thanksgivings and Christmases.   I miss my family terribly and I think because of this silly situation, I am even more sensitive to NOT allowing irrelevant crap take the spotlight from the reason for the season.  A few days ago, I wrote the entry “Filterless.”  Today’s entry piggy-backed on “Filterless.”   Appreciate and love your families to the fullest.  Don’t miss an occasion to share that you love your families and friends and don’t waste the opportunity to apologize if needed as there may not be another opportunity to do so.  Thank you for reading.  Have a very Merry Christmas!          

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