Archive for category Marriage Encouragement

One year ago…

My PCP diagnosed me with anemia. A few months later, I received the hypercalcaemia diagnosis from my endocrinologist, quickly followed by an Osteoporosis diagnosis and put on a drug that might cause me to lose a tooth or two. I want to be off that drug ASAP. Despite all the cumulative crap I’ve been dealing with since ‘17, I finally have a sliver of good news to share.

My endocrinologist at my July appointment basically threw-up his hands and said he’s sending me to an ENT because my symptoms don’t match my numbers, but he believes there’s something indicitive of a tumor, although the thyroid and parathyroid ultrasounds and nuclear medicine tests revealed nothing. My downward spiral of symptoms going from a pretty healthy patient (minus the MS) to going straight down a toilet as my gait in just a few months became that of a 90-year-old trying to be purposeful with each labored step.

Last weekend at church, as I walked to my vehicle and I heard someone behind me and glanced back to see who it was. The older gentleman has always reminded me of my late grandfather and I stopped so he could catch-up to me. He said he had never seen me walk so slow. I laughed and asked if it was really that noticable. Then he went on to explain how he’d always seen me actively chasing the little ones all over and then said he was keeping me in prayer. I tend to be guarded about sharing anything specific, but last Sunday morning, I was confident that the Holy Spirit put it on my heart to share with a few people at church that I was scheduled for surgery December 15 for a pararthyroidectomy.

My endocrinologist did send me to an ENT, who after viewing all the pictures, labs and radiology reports, sent me to another ENT. Well that ENT sent me to his ENT, who is head of the ENT department at the university in town and his MA was able to schedule me for an appointment to see him a week later. I told B I was tempted to cancel the appointment because I was tired of wasting my time and being referred and referred to another doctor, and another doctor, etc. B asked me to keep the appointment and if I still walked away after the appointment feeling dislcouraged and like I wasted my time, then we would seek other treatment. Funny how I get so frustrated that I might have some extreme tendencies to for example, jump off cliffs because it just makes more sense to me to do something drastic , ya know) and then B has this level of discernment that can reel me in and produce peace with a few words.

Well that ENT, about 60 seconds into the appointment, said he had viewed and studied the pictures of my parathyroid and explained he believed at least one part, potentially two of the four-part parathyroid had tumors. I asked him how long he had specialized in ENT studies. 30 years. Only 30 years!! Then he said, “ I’ve seen this before, these symptoms and pictures . I’m confident if we do the 15 minute surgery to take out the parathyroid, that you should start feeling better almost immediately in the recovery room.” And with those few words, those tear ducts started filling up. You might remember that this girl does not cry…. her eyes sweat.

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Ongoing Variables

Prior to the five day Lemtrada treatment in ’16, a team of lab consultants and vampires phlebotemists took eight vials of blood along with the contents of my bladder to establish my base-lines for what my normal numbers were. My thyroid, and red and white blood cells were all completely within a normal range in that analysis two weeks prior to the Lemtrada commencement. Even with Multiple Sclerosis, all these were very much within the range labeled “normal.” I’m explaining this because the following will be somewhat of a brief meaning of the physiological changes that occurred following treatment. We knew of the potential side effects that could happen and from reading the disclosures, there were definitely adverse side effect occurances. With the information that MS could be eliminated through the treatment, I saw the treatment as a calculated risk.

Well, I became the Lemtrada anomaly. My neurologist received reports following those monthly labs to show how my body continued to respond to the treatment. About five months post Lemtrada my thyroid started showing things were changing so off I went to an endocrinologist who put me on medication to control the overcompensating hyperthyroid and a few months later, it became hypothyroidism for my underactive thryoid. Apparently my thyroid couldn’t make up its mind.

In the middle of all this the endocrin diagnosed me with Hashimotos, with vague instructions to stay away from gluten. I thought for a second that that was going to be easy to stay away! How silly was I? Once I researched gluten and found that it was in bread – I love baking bread – and that gluten is in so many of my favorite things {read as nearly everything} many candies I enjoy that include red licorice. But then once I became intentional to stay away from gluten for a month, which began in February 2019, things changed. Those chronic gut aches finally ceased. Over time, gluten-free has become more of a staple in grocery stores as gluten-free snack options are more available. While all these changes started in me and I needed to create my new normal , I was delighted to discover gluten-free snacks in stock with Amazon Prime. Did I mention Gluten-free chocolate covered pretzels?!?! Yum! Simply delightful.

Then a couple months later, the medication changed back to control my hyperthyroid’s overactive antics, but that didn’t go well but after all the nonsense, my numbers finally leveled-off. Then, of all the obscure causes why I didn’t respond well to the prescription, my endocrin said I was allergic to the dye in the prescription pills, so she wrote the Rx in such a way so my pharmacy filled the Rx with non-dyed pills. But then my encodcrinologist moved to Sweden and I was not responding well to the medication anyway so I opted to elimininate the idea of finding another endocrinologist. I didn’t really like her. My first appointment with her was weird. She asked many questions about when and how the MS was diagnosed and in that I explained that auto-immune was in my genes so it was definitely in my genetic make up to rear it’s ugly head. The doc’s take-away was telling me that I missed my calling to go to medical school and figure out why my MS was affecting me and why auto-immune put a target on my family or why Lemtrada screwed up my physiology. Apparently her playbook for me was to discover why I should’ve become a world-reknowned doctor who discovered a cure for MS. I’m not kidding or exagerating about one iota of this.

I would love to say I fired that doc, but timing was such that when I decided to not see this endocrin any longer, she went MIA over-seas. I took the opportunity to be in control, which I should’ve done at the beginning of all this nonsense and researched thyroid supplements and those most highly rated on Amazon. I read many reviews and ordered one supplement. I took for a couple months, but then after I decided that chronic diarhea, even as a temporary side-effect really sucked, I ordered a different highly rated supplement. And “Behold! No chronic diarhea? We had a winner!” Said Jenn after taking it for a month with no unwelcome side-effects. So with the supplement, I felt decent and have continued taking it for a few years now.

Then last September, my (now remember I had to agree to monthly labs for five years following Lemtrada.). Things started changing again with my physiology and my neurologist called and asked me to take a copy of my labs with me to see my PCP. What’s changed this time? I started feeling sick in mid-September ’20. Those labs said I was anemic. Apparently, as of February I’m no longer anemic, but if that’s true why am I still experiencing heart palpitations? Coincidentally, I just felt lousy. This coming December, it will have been five years since Lemtrada ended, but changes were still happening. My internal system has allegedly flushed the toxic chemical cocktail from my body, but things are going awry. For a couple years I put reading my Bible on hold while I was working through my anger at God for allowing our first foster placement after two years with us from birth, be sent to an unknown distant family member in St. Louis.

Perhaps the stress from that situation was another culprit for making my health go sideways. Whatever is going on, I feel like I’m in a fight for my life right now. My new Endocrin tested me for a list of about 25 things in December. A few of those things included conditions related to osteoporosis because with my initial intake appointment with him, he looked at my prior bloodwork and saw that in my urine, there is a high level of calcium, which isn’t normal. My body is leaking calcium. I’m too young to have osteoporosis. Which means I will need surgery to put a stop to this and have my parathyroid removed. I sought a second opinion and that doctor was in agreement that the parathyroid is indeed the problem child. I have an appointment for a bone density scan which should confirm the need for surgery and with the parathyroid removed, it should put a stop to the “calcium leak.”

https://youtube.com/watch?v=X1eMZWiOJ0a0&feature=share

Last June I began reading my Bible again and it’s timely that I am reading Job in the middle of my own health nightmare. God is faithful. I’ve seen and experienced healing in myself and others in years passed. But I’ve doubted him so much and prayed for my own end in order to to be rid of what I know will likely be temporary pain and discomfort. The pain and chronic discomfort that I’ve felt in the last six months is like nothing I’ve experienced before. God healed my MS in 2005. He healed my Dad’s cancer and continues to keep it away. So how dare I doubt his goodness?!?! One of B’s clients has a mom who is also a believer and she told my husband she had a dream about me and that she received a word that I would be healed. But like the Isrealites and their chronic complaining through the desert for 40 years for an 11 day journey, I have to keep my faith and remind myself that like Danny Gokey’s song, I “Just Haven’t Seen It Yet.” The light at the end of the tunnel has become faint, but I have to have faith that my struggles have not been in vain.

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I am a work in progress…

I was blogging with somewhat of a purpose, but then I started analyzing and reanalyzing every stinking thing I do and do not do.  I feel like a mouse trapped in a maze because I have been all over the map trying to figure out what my point is and answer the million dollar question of why do I do what I do? I’ve ultimately determined that my blog is for me.  When I began blogging some years ago. I had hopes illusions of reaching a massive following for those with MS and/or their care-partners and even more of those who were interested in knowing more about being a Christ-follower in the middle of battling a debilitating illness and trying to mainfain faith and trust that God was still good when my Multiple Sclerosis was spiraling out of control.

And it was. I went from being for the most part able-bodied and independent to having to learn to self-catheterize when I couldn’t empty my bladder on my own. Using a cane became obsolete when I had to graduate to using a walker and finally upgrade to a wheelchair all within six months … and back then in October 2001 when I was struggling in my position and could no longer do my job as a consumer loan officer, my neuroligist said I likely wouldn’t see my 30th birthday, which was still some years away. I’m briefly explaining all that to get around to my point that I am going to blog for me because I enjoy writing.  If anyone follows my non-nonsensical gibberish or rantings that get tossed around in my mind, then sure, I hope you enjoy yourself, are encouraged or at the least, can smile at something said, but don’t expect anything Nobel prize worthy. I’m writing for myself as it can be therapeutic. My story is not debateable because it is MY experience and I will not apologize for MY convictions. Consider that fair-warning.

As a Christian I do get mad, upset or annoyed when unexpected circumstances or events (like bad health) put a hiccup in MY plans. Really? Indeed. Because I am a control-feak extrordinaire, but am always trying to give up my own illusions of what I want and instead work toward fulfilling God’s plan for my life. I am a sinner. That’s not a badge, just a recognition that I am so far from being perfect. I have made some massive mistakes that years later, I still struggle with forgiving myself. I am a Christ-follower.  There is a difference because many label themselves as Christians, but they don’t have a relationship with God, pray etc.

Be confident that that is not a judgement of anyone because only God knows an individual’s heart. I am actively seeking God’s will for my life on a continual basis and although I mess-up many times every day, I try to stay on-track. I have a lot of Biblical head kowledge, but am trying to get myself to having more heart knowledge. That is not a pat on my back for ‘intentions’ because intentions do NOT count or provide any points for scoring if that’s how you grade yourself. 2000 years later, Jesus still remains the only perfect human. Perfection is impossble, but God is always at work in people’s lives to refine us into who we’re supposed to be for his purposes.

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Too big to not share

With everything going on and my ever increasing #MSinducedmemoryproblems, I have to share this while I’m thinking about it or “POOF!”  it’ll be gone and I’ll forget again because #MultipleSclerosis is playing hardball with my short-term memory retention these days.  We’re at T minus 10 days until I start the #Lemtrada round one treatment.

Monday morning last week, B #husband #love texted me shortly after he got to work to say that he had some big #news and would share when he got home, but I was busy with the #baby #love and then getting #cleaning stuff done around the house #clean #addict and then POOF, my husband’s text was forgotten!  That thought was gone and I didn’t think twice about it.  I had dinner ready and Baby was fed when B came home, so he changed his clothes #relaxation and then we immediately said a dinner blessing.  He was anxious to share whatever it was and I’d forgotten about the big news so I hesitated and put the burrito #dinner back on the plate.  At his job, B’s an #art #mentor for mentally handicapped students and a student’s mom had called first thing that morning to let the staff know her son would be home sick that day, but as long as B answered the phone, Mary said she had something to share with him.  She shared with B that a few days before, #God had placed on her heart to fast and #pray for me, but she didn’t know why.

Now, my #health is generally not a topic of conversation for either of us with strangers, especially for B at work, where unless I’m experiencing a symptom like vertigo that has required him to be home to care for Baby, other than a few people, no one really knows the rough issues with my #relapsingremittingms that rarely require him to be home, thankfully.  B said that at one point, he had shared with Mary, who is also a #Believer, my testimony of walking again #miracle after being in a wheelchair for years.  You must remember I do not cry, but my eyes occasionally sweat, mostly from allergies #denial.  B then shared that a few days after fasting and praying for me, God told Mary I was going to be #healed.  Initiate single eye-sweating program.  I felt very #blessed that a person I met only once, might feel a burden to fast and pray for me, but I said nothing, then he repeated, “Jenn, Mary said God told her you’re going to be healed soon.”  Level-up.  Initiate inadvertent dual eye-sweating sequence…

So, in no way did I believe I could deserve something so big since I already received such a significant blessing years ago allowing me to walk again #amazing.  It’s like I think my blessing bowl can be filled only once in a life-time.  It’s definitely a process to consistently stop negative thoughts and immediately redirect and recognize those thoughts are inspired by the enemy telling me, “You don’t deserve ___.”   I must stop such thoughts many times each day.  My husband is fantastic to gently remind me that #Godismerciful and doesn’t use a pay-for-play method of forgiveness or blessing.

What?!?  But I already was healed from having to depend on a wheelchair 11 years ago!  #miracle  Oh no-those sweat-glands in my eyes failed in a big way and my eyes began sweating profusely.  I was confused how I was deserving of such a magnificent #blessing. I have a performance-based blessing mentality so I’m actively working to clean-out many years of negative internal-dialogue.  I am still working toward recognizing performance based blessing in no way resembles my merciful and loving Savior.  #nonsensestopshere I must be conscientious to make sure I do not repeat those methods with our foster #babyblessing,  who my husband and I very much hope to #adopt.

I always use speaker-phone so my hands are free to do other mindless tasks like fold laundry while I “chat.”  Unfortunately though, while my phone was on speaker a few months ago, B overheard everything loud and clear so there was no misinterpretation of conversation lecture verbiage about consequences I’m apparently still suffering, making B get a sour taste of that performance-based affection.  “Now I know why you operate with a pay-for-play mentality.  I’m so sorry, Sweetheart – I might get it now.”  Things might have the ability to stick and set the tone for one’s dysfunctional internal dialogue for years, but it really is changing.  #praiseGod #Jesussaves

I’m excited because as this Lemtrada treatment situation has unfolded over the past few months with God opening doors for my grant application to be immediately approved for funding the treatment, my faith steadily increasing and doubt finally gone and being at peace that although risky, Lemtrada is in fact the vehicle through which God will deliver healing as Lemtrada is the only treatment able to heal previous MS damage.  #peacethatpassesallunderstanding  This is exactly where God is guiding me and with healing, I believe He’s also preparing me for great things.  Lord, I’m ready now.  #amen

 

And of course, GO HAWKS!

Jenn

 

 

 

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I was preparing for divorce

The following is a very personal element of my life.  I’m not sharing because I think we deserve “kudos” or have earned a place on any kind of pedestal, but because eighteen months ago, I was confident that by 2014, I would have a new marital status.  There was a disturbing trend and through reading the increase of a few social media statuses, I anticipated my marriage was on the fast-track to becoming another statistic. Even prior to my own marriage having problems, I was discouraged.  I watched several Christian friends’ marriages failing and the alarming nature was that those numbers were higher than non-Christian friends’ divorces.  I watched several couples, whom I had somehow elevated to be the example to strive toward for my own marriage, fail.  Divorce is failure because when God brings two together, they become one flesh.  God is our Creator and God created marriage, therefore, God desires every marriage to be successfully Christ-centered.

My assessment is not the end all be all, but the level of selfishness that I saw in my own marriage as well as witness in some friend’s marriages was off-the-charts.  It’s no wonder Christian marriages are just as high in divorce as those marriages that are not faith-based.  It is offensive to hear married people claim, “But I met my soul-mate,” when they are already married.   Wrong!  When a couple marries, THEY are soul-mates and “discovering” a different soul-mate when one is already married is not from God.  People  tread dangerous waters when they believe that kind of message because only Satan tells people what they want to hear that will enable them to justify their sin.  God does not bring two people together only to set them up for failure and God also does not bring already married people together.  It gets tiresome to hear people claim they can’t help with whom they fall in love.  Yes.  Actually they can.  Begin a relationship based on lies and it’s accurate that it will likely end in the same way.

The latter half of 2012 and most of 2013 marked the most difficult time of my marriage, that according to “experts,” would end with divorce.  Consistent arguing, name-calling, condescension were a few of our chosen tactics.  There had been so much hurt dealt from both of us that I could not see how our situation would change.  I said and did terribly hurtful things toward my husband.  He said and did terribly hurtful things toward me.  Suffice it to say that what was said and done on both sides was inexcusably devastating, however, the smaller details of the infractions are irrelevant at this point.

I want to caution people to consider their use of social media.  It’s innocent enough, but start adding old flames to your “friends” list and sometimes a door is inadvertently left open.  I believed I was progressive toward the idea of being friends with a couple of previous boyfriends, but that attitude was so very misguided, when one attempted to rekindle what was 20 years ago.  There’s a reason why when we “move forward,” the trick is to not look back at what was or may have been because we cannot move straight forward when craning our necks to look backward at the past.  In Genesis 19 NIV, angels guided Abraham’s nephew Lot and his family toward safety with the simplest instructions.  In verse 17, “Flee for your lives!  Don’t look back, and don’t stop anywhere in the plain!  Flee to the mountains or you’ll be swept away!”  But we also read in verse 26 that Lot’s wife disregarded the angel’s instructions by taking a final look at what remained of their home and she became a pillar of salt.  The consequences for ignoring God’s instruction to not look back were obviously permanent for Lot’s wife, but for the rest of us, there are no negative consequences when we do what we should to begin with. 

A scripture that I often hear both Christians and non-Christians take out of context is, “…God will never give me more than I can handle…”.   For example, many reference that scripture when trying to encourage friends who are battling an illness.  The scripture they’re referring to I Corinthians 10:13.  The scripture has everything to do with resisting temptation and nothing to do with battling an illness.  In order to understand any scripture, we must also read the verses before and after.  Beginning with verse 12 NIV, “So, if you think you are standing firm, be careful that you don’t fall!  No temptation has seized you except what is common to man.  And God is faithful;  he will not let you be tempted beyond what you can bear.  But when you are tempted, he will also provide a way out so that you can stand up under it.”    

Being tempted by people or events from the past is dangerous.  I failed to see that the contact with an old flame was a risky temptation.  Fast forward a few years to what happened when my husband also dealt with temptation at work.  His coworker was blatantly pursuing him, but he didn’t see that possibility because, “She knows I’m married.”  When the fog cleared, my husband cut off contact with the individual.  It was another tempting situation that could have turned out worse than it did.  Fact:  Temptation happens to everyone, whether it’s minute to minute, or daily.  Because of this, I want to encourage wives and husbands to be open-books.  Don’t take each other or accountability for granted.  Make your emails, texts and phone usage statements available for each other to view.  Being an open book is mandatory for building trust.  This was an issue in our marriage because my radar went up to hyper alert when I saw flirty texts to my husband and when I verbalized the observation, he was no longer an open book.  

Upon my discovery, I should have immediately prayed for guidance, but the inner voice said call her, smile during the call, be assertive, but professional and nice so she can’t complain.  She still lied about the call when she tattled to my husband that, “Your wife called me!”  I walked away feeling satisfied that I’d planted seeds that I was not about to give up on my marriage because of her.  I still must laugh about the fact that she thought she would sell her sense of being a victim to the organization’s HR department.  She failed to explain to HR that she was “harassed.”   Wives be aware that harassment is apparently defined by a 2.5 minute friendly phone call.  The coworker got into a snit after our chat, but HR left me alone after I “cleared things up” by explaining that she was relentlessly pursuing MY husband.  Yes, the part of placing boundaries was my husband’s responsibility, but remember he failed to recognize that she was a problem.  Again, I should have left that to God, but I’m still a work-in-progress and learning to exercise management of my inner-control-freak.  Fast forward through several weeks and months of turmoil within our marriage.  Again, I failed to immediately give the entire situation to God and my husband was not actively following the Lord.  This was the way in which my husband explained his attitude to our small Bible study group, “I put God on the bench because I told him, I got this, Lord.”   I can laugh about that now and I hate to admit this, but there was one positive that came out of the co-worker situation, which is that our marriage is stronger than ever in accountability, which equates to mutual respect, which also ensures that we do not allow our relationship to become stagnant.       


Only by God’s grace am I able to say that, we successfully “made it to the other side” of the hurt   It’s been work.  A lot of work.  And an ongoing mindset to remain committed to the marriage healing process.  Monthly, weekly, daily, hourly, etc.  You get the point.  When we married 17 years ago, we promised to never utter the word divorce, but with everything that transpired, divorce seemed a reasonable option.  I went through a lot grief, hatred for my husband’s choices and anger toward God for allowing things to occur.   

 
I believe the most substantial and ongoing lesson for staying married through this is that I desperately needed to back-off and let God be God.  I had to cease trying to control my husband’s behavior.  I had to cease quoting scripture, even as relevant as it was for whatever situation.  I had to cease taking my husband’s inventory and refocus attention on changing my own actions so that I would no longer add to my marriage’s failure.  That lesson was the most painful when I recognized with absolute clarity that I was indeed a significant contributing factor to my marriage’s pending failure.  I asked God to forgive me for my misguided actions, forgive us, and I asked for God to help us start over and guide us in rewriting a positive outcome.     
 
“They” say it takes two.  I disagree.  I believe that it takes only one person to put forth any effort.  And faith combined with a lot of prayer.  One person’s actions combined with praying for the right things can move mountains.  I’ve seen it.  Many times.  I say prayer for the “right” things because I, for example, was praying for my husband to be a better husband, when all along I should have been asking God to guide me and mold me into becoming a better wife and the woman God wants me to be.  All this to say that God can mend relationships.  So, seek his guidance, pray and don’t give up on God’s miraculous healing power. 

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