Archive for category MS

Is the potential to make things worse, worth the risk?

I’ve been in the middle of using those critical thinking skills and I think because of my tendency to analyze and reanalyze in all numbers of equations, those skills only become more and sharper to more quickly come to reasonable conclusions.  I’ve been very blessed these last 10 years.  Rereading that number is incredible because I had to use a wheelchair from ’01 to ’05.  10 years ago I was able to quit using a wheelchair.  Wow!  I’ve tried to never take for granted what I have because this disease could easily and without notice, remove a number of abilities as it did in years past.  The abilities to walk, run, see, swallow and void without the proper tool for example are some things that I could not do for a number of years, so when I could do them again, I’ve tried to always remain grateful and Praise God that those abilities were returned to me and that I still have them 10 years later.  The high temperatures of last summer challenged my MS.  Obviously we’re months beyond last summer, but I wonder if it’s possible that the high temperatures continue to have a lingering effect on my current state.

too positive

I saw my neurologist yesterday and while I was in the waiting room I played an iPad game.  Being left-brained, I’m always playing games during which I mentally analyze a number of things that do not have anything to do with the game because I can play the game on ‘automatic pilot’ therefore allowing myself to think on other issues like determining if I’ve created a symptom or whether it was already a symptom.  As I was matching tiles, I noticed a feeling in my leg that I hadn’t experienced in years.  Numbness and tingling.  Then I disregarded what that feeling meant and continued playing.  The nurse lead me to a room and I noticed the feeling again.  A bit later on my way home from my neurologist’s, I was unsettled about the whole numbness episode because although I was conveniently at his office for an appointment, it seemed he was too quick to prescribe a new bout of treatment.  I signed the okay to move forward because I just wanted to get home.  I didn’t bother to turn on the radio while driving because I needed to pray and concentrate on what a new treatment might mean.  At home I immersed myself into tasks that needed to be done before the weekend began and finally, the dam broke and my eyes sweat (I cried).  When I once again acknowledged the unpredictability and reality of my disease, I researched the suggested drug and failed to see any endearing qualities so instead of filling the prescription, I’ll keep doing what I’m doing with exercise and diet.

10 years ago when I got better, I desperately needed a reboot and I quit taking the 13 symptom-chasing drugs that my prior neurologist in Washington kept prescribing for me because I needed to know if those were still necessary.  When I quit taking all those drugs, I almost immediately noticed that I felt better.  Feeling lucid and NOT feeling like a zombie or I guess what I assume a zombie may feel like, definitely feels better.  The list of 14 side-effects of this potential new prescription from my current neurologist included 7 issues that MS currently gives me and upon further reading, those issues would likely be exacerbated with the new prescription!  “hmm  Let me think about this…  gosh, everything sounds very enticing and like something with which I think I should definitely take some risks,” said no reasonable CrusaderJenn EVER.  As I’ve already been down the road of drug cocktails and symptom-chasing, I’m content to wait this round out.  I understand those who see my decision as foolish.  However, please take a moment to understand that I was diagnosed 20 years ago and from MS years 7 through 12, my MS symptoms covered many of those who have a more progressive form of MS.  I doubted my own longevity back then and I recently found out that my family also doubted that I’d make it to 30-years-old because my relapsing-remitting MS progressed so badly and so quickly.  But God did heal me and here I am 10 years later.

I am a big fan of Pinterest and here’s the link to my MS board.  I have to read this board daily as it provides me with a mental boost and some inspiration to keep Fighting the Good Fight.

   http://www.pinterest.com/CrusaderJenn/ms-battling-multiple-sclerosis/

~Jenn

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All over the map

Competitive swimming from grade school through part of college – think hundreds of laps daily and nearly Olympic trials level fast – not slowly floating across the pool on a noodle (that many sadly call ‘swimming,’) piano, flute, 4-H-sewing and cooking and finally Jazz dance, which would be close to the equivalent of today’s hip-hop genre, were my extra-curricular activities growing up.  I had just turned 8 or 9 when I completed the Red Cross certified swimming courses and my stay-at-home Mom was desperate to enroll me in something that would keep me out of trouble  busy so she spoke to my final instructor who was also a coach with the swim team newbies and suggested I try-out for the local club.  I immediately took to competitive swimming, which required little time to learn backward and forward flip-turns so I could keep up with the circle of other swimmers at my level.  My parent’s ongoing joke was that I was born with webbed feet.  So seriously, Mom & Dad, with the umpteen number number of hours in the pool each week, was there even the slightest possibility that I wasn’t?

Swimming continues to be one of my favorite activities and ‘back-in-the-day’ I became somewhat of an aquatics guru within my family, who looked to me to life-guard cousin’s birthday related pool-parties and instruct the how-to’s of swimming and water-skiing to my little sister and younger cousins.  In college I continued to swim with the early morning Masters team.  Many years later when we moved to Nevada, we noticed many homes have pools and when we bought our home a few years ago, we were very excited to have our own.  From mid-spring through late-summer, the outdoor temperatures maintain around 103 and as it’s too expensive to run air conditioning full-time.  Therefore, the pool provides a perfect relief to cooling-down my core.  MS has altered my body’s ability to self-regulate my core so when I become warm, I’m technically overheated, making our pool’s cool temperature a tremendous source of relief and blessing with those high outdoor temperatures for 6 months.  Other than swimming during the hot temperatures, I’m embarrassed to admit I do very little any more.

Obviously, I had the ability to commit long-term to activities while growing-up, but because of MS and what it’s taken from me, my interests are really all over the map.  I think my abilities prior to MS taking me backward have unfortunately dictated what I can or cannot do.  I was never a quitter and I have my folks to thank for instilling in me a stick-to-it attitude, but there have been several activities that I began and quit because of MS ‘issues.’  For example, I discovered and indulged my love for stamping cards and book marks, but when the tremors ataxia started where my hands shook badly, it became impossible to accurately place rubber stamps.  This caused what I had hoped to call ‘artistic creations’ to become somewhat of a mess, resembling over-priced pieces of abstract art, at which point, my neurologist gave me yet another MS related symptom-chasing drug to lessen the shaking, which helped, but at a sacrifice because of the cocktail of drugs.  I was rarely coherent appearing somewhat of a zombie with my glazed-over eyes.  And I quit stamping.  However, I could make a mean martini – shaken, not stirred became my joke because “If I can’t laugh, I may cry,” and I really try to limit that tissue-requiring activity.  I also tried my hand at becoming an independent beauty consultant for a big corporation (whose reps are rewarded with pink cars), but eye-make up was a joke to apply because of that whole fine-motor-skills lacking hand stability.  Then, I became a cooking rep for a company that specialized in quick mixes to create tasty dishes.  Although I had fun and was successful, that was also short-lived when I had to give-up driving.  My attitude was that as much as I still wanted my ‘right’ to be independent to drive, other cars/pedestrians had the right to be safe when my increasing foot/leg ataxia became hazardous to controlling the correct pedals.  And I quit driving.

2015 will mark 10 years ago that God provided healing and pulled me from my wheelchair, but I have nothing to show for it, except several activities in which I invested, only to quit.  Beading was another post-wheelchair favorite, but short-lived activity as I attended bead-shows and then created beautiful bracelets and earrings.  At the same time I came from the wheelchair, I quit the the numerous symptom-chasing prescription drugs because I was tired of feeling like the undead.   Although I was lucid, my hand stability was only achieved after a couple of glasses of wine. That became somewhat of a big discovery.  I could be a creative, but functioning drunk or a non-lucid undead human…  That was an obvious choice.  I have continually returned to writing and I made a goal 10 years ago to write my encouraging story, but I lost my inspiration.  Writing has been a passion since grade-school, but in junior high there was an adult and best friend who ganged-up on me to tell me that I was wasting my time at which point , I guess I gave-up on it, although I would still scribble-out ideas and write creatively, from time to time.  That was very much ‘my bad’ for giving into believing their discouragement and I’ve learned to ignore those voices or mentally give the middle finger salute to those inner voices who say I can’t or that I’m wasting my time.

I realize that I must continue to actively learn something – anything productive.  I did online courses a couple of years ago in which I discovered I’m completely left-brained.  Thank you, Dad, who is an engineer.  It feels great to be learning and I’ve tossed around the idea of learning to use a knitting loom as it doesn’t require fine-motor-skills.  I may also again attempt to bead or stamp as my ataxia seems to be becoming less of an issue…  Praise God because martini-making provides a very limited skill-set.  I’ll keep you posted on what activity has gained my attention…

Jenn

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Merry Christmas!


Yesterday, we made plans to visit Las Vegas’s hotels that display extravagant and beautiful Christmas decor.  We set a time to get-together with another couple (my husband’s pseudo-family), but we got distracted and failed to call the other couple in a timely fashion to let them know we were running late.  My  husband asked me to call and warned that there’d be “drama.”  I called and apologized and laughed explaining that we didn’t realize it was so late, but before I could even finish an apology, the wife interrupted by unleashing a tirade about ruining their day, ruining their plans, etc., then hung up on me.  Wow!  Silly me, because I thought the practice of hanging up on someone, was, “So junior high!” but this retired woman is nearly a half of a century late for bringing-back the immature behavior.  

But……. that wasn’t the first time.  About eighteen months ago, the wife (very much a stranger at the time) pulled the same stunt, yelling at me, unleashing her verbal venom that began when I returned her call.  Her prior message neither indicated it was urgent or life-threatening, so when I did call her back within a couple of days, she began her tirade with, “You’re so selfish, Jennifer for not calling sooner, you’ve always been selfish and it’s no wonder why people think you’re selfish.”  Clearly, she has control issues in that she does not maintain any effective filters or maintain self-control or consideration for the damage she causes during her rantings.  Bless her daughter-in-law who explained that they take the high-road because it costs to much to be involved when the wife is mid-metamorphosis into Wifezilla.  No wonder they limit their contact!  We’re not even actual family, so my guess is that everyone gets their “fair-share” of the woe-man’s mean-streak.    

Return to present when my husband heard yesterday’s call because it was on speaker.  He got an angry message from the husband shortly after Wifezilla ranted at me and said he’d wait a day to call.  The whole thing should not have been a “thing,” but the way she yelled and spewed, one might think that the world ended.  Good grief – it was a plan to see some Christmas lights!  I received a call this morning from the husband, saw who on caller ID, but before I answered, I prayed and asked God over and over to allow cooler heads to prevail.  I was never angry, just a little irritated that this was even an issue in the first place.  Our call was friendly and he said they’d cooled off (thank you, Lord) and when he paused, I took the opportunity to express that our intent was never to “ruin everyone’s day,” we were distracted, I was sorry for not calling sooner and that I hoped we can all get past this.  I am thankful that the husband called and used clear thinking in this situation because Wife’s habit of dramatic histrionics is over-the-top and unnecessary.   

I place emphasis on the point to avoid getting caught up in irrelevant, nonsensical situations like this.  I learned from various experience in the past, that stress is very much a catapult to an MS retrogression.  Once I learned to not allow various stress triggers into my thought-patterns and over-all-life, my health improved.  It became simple to “not play a culprit’s game.”  Yesterday, when I didn’t react to the  woe-man’s theatrics, I did myself a favor and at the same time, I did not give in to the not-so-enticing temptation that Satan dangled before me, and therefore honored God.  I did take the high road and that isn’t to praise my own self-control, but to convey the necessity of recognizing one’s stress-triggers.  Learning to recognize and control these triggers by walking away from them or choosing to NOT engage in them, is essential especially for family / friend gatherings.  Remember gatherings are supposed to be celebratory and by giving in to engaging in nonsense, we take attention away from the focal point.  

Because I am away from my family in Washington through 2013’s holidays, I am so grateful for the years and years of family birthdays, Thanksgivings and Christmases.   I miss my family terribly and I think because of this silly situation, I am even more sensitive to NOT allowing irrelevant crap take the spotlight from the reason for the season.  A few days ago, I wrote the entry “Filterless.”  Today’s entry piggy-backed on “Filterless.”   Appreciate and love your families to the fullest.  Don’t miss an occasion to share that you love your families and friends and don’t waste the opportunity to apologize if needed as there may not be another opportunity to do so.  Thank you for reading.  Have a very Merry Christmas!          

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Filterless: an act of failing to use courtesy or common sense in conversation

I’ve missed writing the last few weeks, but my absence gave me a much-needed opportunity to reevaluate my blog as I’ve continued reading several that I follow.  Most blogs are treated as an appropriate means of communicating information, ideas or suggestions, recipes, life, or health challenges, etc. and I want to applaud those who successfully maintain their blogs with consistent posts and varied topics. The past weeks I’ve been discouraged, unmotivated to write and actively trying to understand what has been pressing on me about my blog.  When something is unclear or “bugging” me, I address it in prayer and ask God to reveal to me whatever “it” is and God will often cause me to think of something in a direction where my mind was not even going or cause me to recognize something about myself or something I should pray for family or friends in the midst of my daily activities.   I was focused on blogging about MS, but it’s obvious I must steer this in another direction because I want to be a source of encouragement, but there is only so much I can address without sounding like “Debbie Downer,” so now I’ll add life observations, situations, challenges how my faith makes a difference in approaching those factors.      

In reading other blogs, I have a concern with reader responses and more specifically blog-following individuals who fail to use or recognize their pre-existing Common Sense Filter prior to responding to a blogger’s post.  A friend’s blog addressed her struggles with her children who both have autism and somehow a reader thought they had the “right” to stand in superior judgement of why it’s my friend’s fault that her kids have autism.  Really?  Yes.  This foolish person had the audacity to blame my friend for her children’s autism, but it was humbling to see this “expert” had the time to preach and condemn my friend!  My hope is that last statement in Italics reeked of my second language, sarcasm, in which I am exceptionally fluent and when life provides a plethora of material for me to work with, it’d be a shame to waste my “gift.”  

To the autism expert, if my friend is that lacking in your obviously perfected level of parenting autistic children, you might consider offering helpful suggestions rather than judgement.  In John 8, Jesus sees a massive crowd looking to stone a woman for adultery and the crowd is essentially waiting for Jesus’s permission to begin stoning the woman, when instead, he says to the crowd who are ready with rocks in hand, “Let he who is without sin cast the first stone.”   The crowd dispersed and when only the woman and Jesus remained, He said to her, “Neither will I condemn you.  Go and sin no more.”  


The parallel is that it is so easy for strangers like you to anonymously respond and judge, without any clue as to how life could be living with any number of life-altering conditions like autism.  Please consider that parenting is challenging enough on its own, so I can only imagine how even more challenging to add a disability to the equation and then also challenging are hecklers like you only screaming, “You’re doing it wrong!!,” instead of offering helpful guidance.  Parenting is an ongoing learning process.  Remember the saying, “You catch flies better with honey than vinegar.”  Perhaps in the future, you should research, write a draft but don’t post it, read it a day or two later, take your own inventory and reflect on whether the immaturity, judgmental and hurtful rhetoric was necessary opposed to the help that you clearly failed to convey.  I suspect, during that time of reflection, your eyes may be opened and that is where the Common Sense Filter kicks in and instead of posting another harshly inappropriate response, you hit delete. 

I hope that you recognize your response to my friend was unquestionably out of line.  That said, I’ve finally arrived at my point for this post about grace, which is to show mercy, favor.  God shows us grace on a daily basis and because of that, I believe that you responded emotionally, instead of rationally.  That is grace.  You did nothing to offend me personally, but because I saw that there was that missing element of common sense for you, I hope you’ll apologize to my friend, although forgiveness actually requires no confession from you in order for her to forgive you.  My prayer is that she will forgive and never give your actions another thought.  Grace.   The exercise of love, kindness, mercy or serve another.  


I had an experience at a party.  An individual asked me a question that ranked in tackiness up there with, “How much money do you make?”  I was shocked that they obviously felt like the question was appropriate to ask a stranger, let alone okay to ask at all.  There was zero hesitation or “filter” on their part.  The next morning, as I considered the question, I was reminded of another experience while in our home-town, in a small group.  I was a stranger in a group of believers.  Being new, I shared my testimony.  Testimonies are personal and are never debatable because they are so personal and involve personal experiences or events that ultimately lead individuals to make the choice to follow Christ.   

One individual saw my testimony as opportunity to anoint themselves as my judge and jury.  The individual was immature and even more immature in their  faith.  Not one person questioned them when sharing their own testimony that included failed marriage, but apparently like myself, there are many who value their Common Sense Filters that may prevent them from saying something inappropriate.   I forgave the individual’s ignorance, but I’m ashamed to admit that nearly ten years later with the recent situation and being asked such a personal question, I felt on the defensive.  I replied, “Enough.”   That feeling was from the enemy because I had no reason to feel protective or defensive.  However, the individual accepted the enemy’s temptation to be a nosy-Nellie and I gave them grace.  The following morning, I told my husband what this person asked and my husband said, “That was very inappropriate, but that’s where we have to give them grace.”   I am in no way patting myself on the back because I am also a work in progress on the road of following Christ.  Instead of responding to them in an equally rude way, I gave the person grace in a brief response, but have also kept them consistently in prayer because the individual is immature, but more important, they are a newer believer and my actions may be influential.  Grace.     

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MS retrogression…

When the second exacerbation occurred in ’97, my neurologist wrote the prescription for my first CRAB MonSter treatment.  Those of you in the know, understand the acronym CRAB stands for Copaxone, Rebif, Avonex, Betaseron and my Neurologist prescribed Avonex.  The idea of a weekly injection was inconvenient because I was determined to fight this MonSter on my own, but because of the administration of the drug and its side-effects, it became a couple’s issue.  Avonex was designed as an intramuscular injection, therefore, the needle was longer and thicker for going directly  into the muscle.  

Among the onset of symptoms with the exacerbation, was a slight tremor.  I was right-handed and of course, this tremor affected only my right hand. The tremor-like symptom has forced me over the years to become ambidextrous, but at the time, doing the injection for myself was not an option. The tremor did not play nice, nor did it allow me to accurately inject and by default, my husband’s steady hand made more sense for completing the weekly ritual.  Avonex resources were “dialed-in” and provided us with drug prep training and administration training so that both of us were entirely comfortable with the whole Avonex process before we were ready to inject on our own.  

God bless my husband for embracing the training and practicing the process until he was ready to inject that (what appeared to me at the time was a 14 inch) needle.  Realistically, it was only a couple inches long, but injecting something into a loved-one that would ultimately cause pain was very different than going into the doctor’s office for a routine, but somewhat impersonal flu-shot, for example.  Because of the tremor, I had to resign myself to allowing my husband to be my care-partner, which was something I have embraced over the years, but at the time, felt as though my independence was being ripped away from me, without my permission and happened way too early since I was only 23 years old.   

The first couple of solo injections were supervised to ensure nothing was overlooked.  In 15 years of medications, praise God that there has not been even a hiccup.  I switched from Avonex in Spring of ’01, but the ritual went like this:  we washed our hands, my husband swabbed the vial of liquid with alcohol, extracted the liquid with the syringe and injected it into the other vial to dissolve the pill-like substance of Avonex from its original form, I bared one of my hips in the mirror, marked a spot with a crescent-like nail imprint, cleaned the spot with alcohol, waited for the alcohol to dry and my mind greatly increased the length of the needle and syringe.  Truthfully, it was not excessively long when he injected the Avonex.  

With the knowledge that Avonex was an interferon drug and was prone to offer flu-like symptoms, we determined that the injection should be Friday night so that I might sleep through the flu-like side-effects and wake Saturday morning, ready to tackle the remainder of the weekend with whatever we had planned.  But God, in his desire to make me slow down said, “Not so Fast, Missy.”  The lesson was:


The whole thing was the first of many lessons over the years that God used to teach me to recognize that I must be flexible, for myself as well as for family and friends. The flu-like symptoms rendered me useless for several hours.  In the beginning, I fought the symptoms, but in my stubbornness, I made myself worse for not allowing myself to take the much-needed rest that God was trying to show me was mandatory in order for me to improve.  It took a few years, but the situation was the beginning of many lessons in the realization that nothing I did would ever control the outcome of anything, especially that of my MS’s debilitating status. 

 

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Beginning MS

The symptoms that led up to my diagnosis in October ’94 were short-lived as they lasted only a several weeks and subsided before winter in December.  That first glimpse of MS was minor in comparison with the diversified MS related issues I experienced later and will address in future posts.    

In ’94, stress was not something that I controlled successfully, but the following several months were uneventful and then ’96 was a fantastic year because late August, I met my husband. During early dating, he shared some news about a childhood friend who was diagnosed with MS and as I had not yet shared my own diagnosis, I determined God presented the opportunity and I utilized it.  I related my situation and his reaction could not have been more ambiguous, which I mentally assumed indicated I would not hear from him again, which was fine as I liked him, but there were no deep feelings involved and I was content with my job at the bank. 


God had other plans because we continued dating and then within only weeks of my “MS news,” he became more serious.  I still was not convinced that he was settled with my news and I declined his proposal six weeks into our courtship.  (My Mom’s cousins who are sisters both have MS and I did not know the older sister well, but the family was aware of her husband’s reputation prior to her MS complications related passing), so in my mind, I was protecting myself from future hurt.   I explained this to soon-to-be-husband and also that because of MS, I was afraid to have children so I would not be in his way to have a family.  He was a tad upset when he explained that he fell in love with me because of my strength, my faith and my sense of humor.  He also explained that he didn’t want to marry MS, but he wanted to, “Marry a beautiful woman, who happened to have MS.”  [Everyone sigh, “Awww!”]  And proposal attempt number two was accepted.  


He planned the wedding and reception.  No, he did not suggest anything like beer-pong or peanuts on the reception tables, but before he planned anything he asked if I would rather have a house or a big wedding.  Duh!  A house!  So we chose to do a small wedding with only family in attendance and bought a house six months later.  I was relieved of wedding planning stress, but buying our first house brought on MS flare-up number two during July 1997.  I saw my neurologist shortly after moving and he prescribed my first interferon drug for injection.  

Stress-induced symptoms had returned with numbness replaying the role of Symptom Leader, prior to and during our move with moving day being the worst.  Moving in 80 degree heat was challenging enough, but what I discovered further into summer is that heat is fine, but it was the humidity component on moving day that had changed everything.  I can function well in 80 degree heat and single digit humidity.  Less than 40% humidity presented hiccups in my strength and coordination, but exceed 75% and I am rendered useless so praise God for air-conditioning!  




Not everyone with MS has the same experience so there is a massive learning curve for all of us MS patients.  In trying various treatments, I discovered MS is entirely individual because what worked for others was not successful for me.  I mentioned earlier that just like varying symptoms, there are several treatment options, which will also be addressed in future posts.  

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Diagnosis

We relocated to Nevada in 2011. My husband moved in February for a job and after our home sold, I arrived mid-April.  After relocating hundreds of miles, I determined, my rig needed a tune-up.  As a woman of faith, I believe God places people in our paths for a number of opportunities and the auto-shop presented friendship. My soon-to-be-friend, (I’ll call her D) was in the shop’s waiting room and we talked about everything from weather to health. 

D shared she was in a battle to obtain an MS diagnosis because her non-conclusive test-results were delaying potential disease treatment.  I shared that from the start of being symptomatic through all my own appointments, I thankfully obtained my MS diagnosis in less than a month at 20.  My age is relevant because almost twenty years-ago, some “specialists” had an age hang-up.  “Because twenty-something’s are not diagnosed with MS.”  

 

I’m thankful that both my first neurologist and second opinion neurologist’s diagnoses were consistent.  D, who is my age, began having symptoms a couple of years ago and has yet to receive a definitive diagnosis since the lumbar-puncture and MRI were “non-conclusive.”  My new PCP referred me to a neurologist, whom she was seeing for her own MS symptoms.  And DH was already seeing that same neurologist.  And D also shares my faith.  And we’re the same age.
 
That situation was obviously orchestrated by God for D and I to become friends.  I was new in Nevada and D is a kindred-spirit who is in an unknown state of health, but could use somewhat of a “guide” through navigating the waters of understanding her symptoms, emotional turmoil and ensuring that her battles are “normal.” 

I am privileged to know D and I pray that as a nearly two decade seasoned veteran of the disease that I will be an effective source for guidance and support. 

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MS is Interesting

I was a blogger about three years ago, but I felt like I was just another boring blogger who mused about boring and irrelevant nonsense and thus, eliminated the boring blog.  At the prompting of my husband, I am going to resume sharing my story, but this time, more openly as far as all the ups, the downs, the emotions, the struggles and results of living with the day to day battles of the neurological disease, Multiple Sclerosis.  I want to inspire people.

In October 1994, two years out of high school and only weeks following the traumatic death of a friend, the numbness and tingling in my right side extremities began.  Unbeknownst to me at the time, my Mom – who honestly should have an honorary medical degree, is exceptionally wise.  She consistently and accurately diagnosed my sister Jackie and I with conditions from the flu to hypochondria while we grew-up and our Mom was understandably alarmed about my symptoms and contacted my doctor about her concerns.  She was not meddling, but because she was aware of the similar warning signs that resulted in her two cousins MS diagnoses years prior, she desired to ensure that my doctor referred me to the most appropriate specialist.  

Following the relapsing-remitting diagnosis, the next few years were uneventful, but Spring of ’01 brought on the onset of reoccurring symptoms.  Those inconsistent and unpredictable indicators taking up residency resulted in me labeling Multiple Sclerosis the MonSter.  Through this blog, I will share my own MS struggles and experiences, combined with my victories and my hope is that I encourage others who are both new to and or seasoned veterans of this MS battle.

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