The last several months I’ve dreaded doing my MS drug treatment injections.  Dreaded.  As in I will wait AVOID and wait AVOID some more until I cannot AVOID it any longer on my injection days and have to make-up my mind to just do my darn shot.  8000 daily injections (some days two) in 16 years might have that effect.  Despite nurses coming out to my home and observing my shot routines and trying new shot depths for the injection device, I could not get injection site swelling reactions to cease or even diminish so my injection sites were finally limited to my hips and tummy, where it’s less painful because ultimately and consistently, I still need my medication.  Six weeks ago, we saw my neurologist, asked a lot of questions based on our research of available non-injection drug treatments and I realized my tolerance is high for drugs that could potentially kill me, versus low for drug treatments that could cause me nausea.  I actually find that very amusing.  

The thing is all MS drug treatments have that little disclaimer that they might cause death, but that number is so low and related to patients who already had other issues going on.  So when all this dread began a while back, we started praying about a new drug option.  Our faith is not in a drug, but that God will allow the drug to be the vehicle that improves my disease status.  As we started praying for doors to be opened with this treatment, but clearly shut if this was not something to pursue, the doors opened quickly and have remained open, which answered our question, but I began doubting because everything was falling in to place, too fast, in my opinion.  

Then, God asked if I would doubt his provision of the opportunity for which we prayed…   I felt convicted and finally my husband shared that he’d been praying for the doors tobe wide open or nailed shut.  After our research, we definitely leaned toward a particular drug, but lacked the needed funding.  It’s expensive.  Why are chronic disease treatment meds so stinking expensive?  I’ll tell you why.  Because drug companies make way more money treating a “no-cure-in-sight” chronic illness than to patent any available disease management improving treatments.  The drug that I’ve been pursuing is not a cure, but a disease-altering method of disease management.  Many of the individuals who have taken the drug were at a bad place disease-wise where this drug was their final hope and this drug delivered for them.   
For now, I’ll start making a list of all the symptoms that I hope and pray will diminish or disappear as a result of this treatment and keep doing my now three-times-per-week shots because I’ve been approved and funded for this new treatment.  With the end in-sight, I’ve developed short-timers and am anxious for this new treatment chapter to begin.  Treatment will begin sometime in the next few weeks at which point, I’ll name the drug and all the little details that go with it.