Posts Tagged peace

10 days and counting…

Which means a week from Wednesday, my ENT is surgically removing the misbehaving glands of my parathyroid, or at least removing that portion of it. Which he’s been doing for other patients. For 30 years. For patients who share a similar list of symptoms. I’m anxious to be rid of the nasty culprit. That has flipped my life in topsy turvy fashion, only to hide itself from being a team player and resist showing its entire self in medical photos. Even the best radiology center could not obtain pictures that revealed, nor was their biopsy conclusive of what was going on. However, the ENT continued to view and review a few particular images of the one gland he could see out of 4 parathyroid glands, which told him to do nuclear testing which made my parathyroid light up. No, I was not lit up like a Christmas tree. But, what my ENT saw as it was plainly bright, was enough to order several more tests to confirm his suspicions and order surgery following obtaining those additional tests to be completed as soon as possible.

The right parathyroid gland had a sizable dark spot that proved to be an adenoma. Although benign, my ENT said tumors still cause disruptions in patient’s lives because where there is 1 adenoma, there are often 2 so doctors check for another in all the glands when they do surgery. Disruptions like a patient’s gate change and hobbling around instead of walking normally, like testing positive for osteoporosis at a younger than typical age for diagnosis because her body decided to leak calcium, like the bone density scan additionally proved that because of the calcium loss, that my bones are losing density and could potentially become so brittle that tripping once more on the stairs could cause a broken bone or a few plus another few fractures.

My Endocrinologist understandably prescribed a calcium replacement drug that I started taking in June, but my ENT, whom I initially saw in early October, because of adverse side effects, wants me to stop taking the drug asap. When I was given the prescription, I did research and despite the risk to lose teeth and calcium, while also gaining calcium and bone density, I filled the prescription because there are other drugs out there that offer positive effects, but they also yield comparable negative effects. Six to one, half dozen the other…

That said, I am keeping December’s appointment to remove some of, if not all the parathyroid.

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Here we go…

This happens every year. This year I think the inauguration of Autumn baking thoughts happened when our daughter and I were watching B carve Halloween Pumpkins for our little family. But dancing skeletons evolved into dancing sugarplums. Or perhaps it was watching Charlie Brown’s great pumpkin that evolved into musings of pumpkin bread Christmas.

I love the distraction of post-Halloween plans. I mean I put up a few decorations for Halloween, and I think some decor is fun for the Holiday, but I see some people do an overload of focusing on evil and finding that humorous. For example, each year the neighbor behind us picks some dark theme and decorates accordingly. This neighbor is technically not on our street. But the upstairs master bedroom has a deck/patio that can view our backyard. Some years ago, with the rere-lease of It, for Halloween, the neighbor hung a massive decorative sheet from his upstairs bedroom patio so everyone at the end of our street, or anyone who dared take a detour down our street would have a clear leave nothing to the imagination view of Pennywise and all his bloody-faced glory, having no regard for little ones who might be traumatized by seeing a glimpse.

Unfortunately, when another neighbor asked them to take it down and to keep in mind those little and innocent trick-or-treater’s eyes who should be protected from seeing that, the neighbor saw himself as a self-appointed messenger doing everyone a favor and said, “Mind your own business, besides kids will see it eventually.” Lord, have mercy! We had the displeasure of seeing that nightmare one Halloween, but thankfully on the flip side, those same neighbors have not used their back deck since then to hang anything.

Now, I am not trying to portay myself as an innocent. I read Stephen King as a teenager and an early twenty-something, but my time reading dark literature was satisfied after I finished It. My late Granny took all five of the grandkids (I am the oldest) to the circus every year as youngsters when Ringling Brothers were in town, so I grew up liking clowns. However, the novel about Pennywise changed my appreciation of clowns and they ceased being fun. That novel really changed my simplistic view because apparently, clowns are not always happy.

Who can explain the nonsensical ramblings of a Jenn? Certainly not I. And that may or may not have any correlation to anything, When all of a sudden, my little brain thinks snowmen, more specifically, giggling about Olaf’s sweet ignorance of being a happy snowman in summer. And then there’s the fragrance of cinnamon inspired goodies like baking gingersnaps, pumpkin bread or snickerdoodles! Yum! Maybe it was because we had a short ‘bout of cooler temperatures, that reminded me of winter, though I’m about three weeks early… which then inspired me to think snowflakes again and cause me to bake because why wouldn’t I associate gingersnaps with autumn? They go together. Then winter solstice and just a few days later Christmas? Or maybe it was when my 2-year-old handed me a book to read her – the story about how that green thief who stole Christmas.

Praise God for all these distractions with my surgery coming up so there’s zero opportunity to fixate on worrying when I know God’s in control.

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The end of the tunnel just became brighter…

When MS became more than MS with the unforseen truckload of additional health issues caused by the drug Lemtrada, I really questioned God and his faithfulness. I’m very aware there was never a guarantee that my life would be obstacle free. In fact as a Christian, it is a sure thing that God will allow trials for my own growth.

Having problems pushed me to know him better or have I reacted by becoming closed-up or anti-social?

As problems manifest, I have been prone to isolation. It’s way more comfortable than sharing anything for which folks will likely shun me anyway. So, in a sense I’m doing my future self a favor. Right? Totally. Except. God didn’t create any person to survive alone, but thrive with others to support, encourage, lift-up during times such as these. And there I was isolating myself at home, doing distance church from my iPad at home to avoid being a burden or a slow-poke with my cane or avoid questions like , “what happened?” from nosy-nellies posing as concerned people who care.

Ouch. Thank you, Lord for convicting me of being narcissistic and shame on me for doubting anyone’s intentions. That’s my normal reaction, but it dawned on me, (again thank you, Lord) last week watching church, that with all this crap going on with my health, that I have a fantastic testimony opportunity. And so after many weeks at home during church, but watching from a distance, I put on my big-girl pants and went back to church.

For an incredible reason. For B and I to have our two-year-old daughter dedicated at church. Didn’t I mention we had a foster child in our home? That we officially adopted at the beginning of August?

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I am a work in progress…

I was blogging with somewhat of a purpose, but then I started analyzing and reanalyzing every stinking thing I do and do not do.  I feel like a mouse trapped in a maze because I have been all over the map trying to figure out what my point is and answer the million dollar question of why do I do what I do? I’ve ultimately determined that my blog is for me.  When I began blogging some years ago. I had hopes illusions of reaching a massive following for those with MS and/or their care-partners and even more of those who were interested in knowing more about being a Christ-follower in the middle of battling a debilitating illness and trying to mainfain faith and trust that God was still good when my Multiple Sclerosis was spiraling out of control.

And it was. I went from being for the most part able-bodied and independent to having to learn to self-catheterize when I couldn’t empty my bladder on my own. Using a cane became obsolete when I had to graduate to using a walker and finally upgrade to a wheelchair all within six months … and back then in October 2001 when I was struggling in my position and could no longer do my job as a consumer loan officer, my neuroligist said I likely wouldn’t see my 30th birthday, which was still some years away. I’m briefly explaining all that to get around to my point that I am going to blog for me because I enjoy writing.  If anyone follows my non-nonsensical gibberish or rantings that get tossed around in my mind, then sure, I hope you enjoy yourself, are encouraged or at the least, can smile at something said, but don’t expect anything Nobel prize worthy. I’m writing for myself as it can be therapeutic. My story is not debateable because it is MY experience and I will not apologize for MY convictions. Consider that fair-warning.

As a Christian I do get mad, upset or annoyed when unexpected circumstances or events (like bad health) put a hiccup in MY plans. Really? Indeed. Because I am a control-feak extrordinaire, but am always trying to give up my own illusions of what I want and instead work toward fulfilling God’s plan for my life. I am a sinner. That’s not a badge, just a recognition that I am so far from being perfect. I have made some massive mistakes that years later, I still struggle with forgiving myself. I am a Christ-follower.  There is a difference because many label themselves as Christians, but they don’t have a relationship with God, pray etc.

Be confident that that is not a judgement of anyone because only God knows an individual’s heart. I am actively seeking God’s will for my life on a continual basis and although I mess-up many times every day, I try to stay on-track. I have a lot of Biblical head kowledge, but am trying to get myself to having more heart knowledge. That is not a pat on my back for ‘intentions’ because intentions do NOT count or provide any points for scoring if that’s how you grade yourself. 2000 years later, Jesus still remains the only perfect human. Perfection is impossble, but God is always at work in people’s lives to refine us into who we’re supposed to be for his purposes.

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Stop self-diagnosing and seek professional help

I woke in the middle of Friday night to a very loud crash and shot out of bed when I noticed my husband wasn’t next to me.  I ran to the bathroom and said B’s name.  “Are you alright, Sweetheart?”  There was no response and I turned on the light.  He was on the floor.  His forehead was bleeding.  He had passed out and came-to as I was talking to him.  The situation was terrifying.  I asked him what was going on, if he had a stomach ache?  Should I call 9-1-1?  He was sweating profusely.  He said no to calling, but he wanted needed to get back in bed as he was dizzy and very disoriented.  B is several inches taller and heavier, but I tried to help B stand-up the best I could and as it appeared he made progress in his steps.  I reached to push the bathroom door out of the way and B fell again with another crash.  What was going on?  Something was clearly very wrong and my mind began racing with “what ifs?”  
B was again unreceptive to me calling 9-1-1 as he had no thoughts that his life was in jeopardy, but asked me to start taking notes about how he felt because we’d probably need those later.  I got my tablet, opened the appropriate App and started typing short-hand as fast as I could.  B shared what types of symtoms started when and I sought a second opinion from that handy web-based MD App, plugged in symptoms and coincidentally, the App agreed with my own assessment.  The thing is, I really say that the App agreed with moi, tongue-in-cheek because neither B, nor I are medical professionals.  

I shared the other day that I’m back to white-knuckling everything…  And then this situation with my wonderful husband’s health at stake, just about sent me over the edge.  Why?  Currently, we have custody of a growing 6-month-old baby, whom we hope to adopt in the coming months, although I’ve been clear with B that I’m fine with her being here as long as he remains healthy because I am terrified to be a single parent.  Terrified.  We’re also actively pursuing application approval for me to receive a fairly new FDA approved MS therapy that has the potential to repair much of what MS took from me many years ago and then add-in all the other nagging, problematic issues of my our life and I’m a clear-cut case for a nervous breakdown.  About a year ago, I started having somewhat regular panic attacks when my/our circumstances or coming events become overwhelming.  I had my first panic attack last fall before B took me to the airport to visit my family, another one when we gained custody of our foster baby – give me some grace as we’d never had children, another panic attack when our baby’s drug-dependent mom accosted me in early spring and each week thereafter for the next few months until I finally came to realization that God’s angels surrounded me and baby D when her mom got in my face, then the start of another attack as I fretted about B the other night as I watched him go back to sleep, worrying.  

I’m so glad my husband is willing to go to the doctor when things are not right.  First thing Saturday morning, he went to do a walk-in and was seen almost immediately.  He said the PA did a full exam and shared her assessment, but that he’d need a CT scan Monday morning to get pictures of the condition she suspected.  But with insurance, the CT scan copay would be $1100 and B said, “No.”  So he’s been telling me because we don’t have that available, there must be another answer.  And B also keeps telling me that instead of it being about his health, perhaps it’s entirely about ME and my need to put my faith into trusting God and resting in him instead of burdening myself with worrying about things over which I have no control.  B has three goose eggs where his head hit the tile and he’s confident he didn’t get concussed, but all things considered, I think the gooseeggs are minor in the grand scheme.  

Our pets are so at-ease about everything.  I mean, they’re intuitive and seek to comfort when one of us is not well, but they don’t wring their paws with worry.  Dear God, thank you for my husband and thank you for protecting him when he fell.  Thank you also that this situation was not worse and please help me in my faith. And please help me to be like our pets and be at peace, Lord trusting and being at peace in you as they trust in us.

Have you had a similar situation with your spouse?  How did you prepare or deal with this type of situation when you were in it or after the fact?  

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It is well with my soul

I love the newer version of this old hymn and God has continued to use this song to keep me and my thoughts in-check because at times, and I’ll be honest, I’ve gone from zero negativity to Defcon Red in milliseconds, for which there is really no valid reason.  Those reasons have been ridiculous and those worries have been entirely unfounded.  The “what if?” game and I have been on again, off again roommates and I still have to work at kicking-out the unwanted guest when they attempt to argue, sit down and makes themselves at home for an extended stay as they readily rehash what’s wrong in my life, when all I must do is counter-hash everything that is right.  Here is Matt Redman’s version of “It Is Well With My Soul.”

I have been so very blessed!  In 2001 my MS was on a fast-track quickly retrogressing and I became dependent upon using a wheelchair full-time.  2015 marks 10 years since I regained feeling in my legs, was healed and able to again walk and not require the assistance of a wheelchair.  Thank you, Lord.  

boiling

My Dad was diagnosed with cancer a little over a year ago in 2014.  With each quarterly exam, the cancer was confirmed with the understanding that because it was a slow-growing cancer, nothing was an emergency, but it would need to be monitored.  My Dad’s quarterly cancer check-up and biopsy in June came back, “No cancer.”  As in with all the many many samples they extracted, there was NO TRACE of it.  Thank you, Lord.

Our oldest kitty Thor, died at end of April- just a couple of months ago.  He was with us 18 years and he lived a pretty long and happy life filled with chasing string and consistent purrs.  We adopted Thor shortly after B and I married.  Our youngest kitty, Zephyr was diagnosed with kidney stones last winter and because of the process of going under the knife, we’ve hesitated to get him the surgery.  With our loss of Thor, the Lord knew we needed some comfort and allowed Zephyr to be instrumental in providing that with lots of loves and cuddles as we mourned, but we remained worried that his condition would also take him from us too soon.  Zephyr is now stone-free. Thank you, Lord.

My husband had a bad cough for about a year and the doctor said it was fine.  It went away and then the cough started again and I kept reminding B to go to his doctor to see what was going on.  They did a full exam and also ran an x-ray this time around.  The x-ray was clear and everything is absolutely fine with his lungs except that the doc put him on an allergy regimen and now that painful cough is almost completely gone.  Thank you, Lord.

I doubt that there are any other Christians out there who have ever been able to relate to being control-freaks or worrying excessively.  What?  You might resemble being controlling?  You worry about stuff too?  Then you can relate…  I guess that somehow I believed in my very misguided perception is that if I worried needlessly about anything big or small, that things will get better or something ridiculous like that.  I am thankful that God has a plan and that through my worries, He’s waited patiently for me to step-back, give him those reigns for my inner control-freak extraordinaire and just let him be God.  It’s a process and I am an active work-in-progress with needing to remind myself daily that, “‘He’s got this, Jenn.”  It’s very silly the amount of control that I perceive I have.  I believe that the above situations served for no other purpose than to get my faith on-track.  But then, it may not be all about me, so perhaps my perspective is selfish in that the listed situations were to grow my faith, when those also could have also served to grow my husband’s faith, my Dad faith, my Mom’s faith and / or my Sister’s faith…

As B and I have again felt led to pursue adoption, our faith has very much been stretched.  It’s far from ideal circumstances since we’re older and have less money than the first time we attempted to adopt in ’07, but God’s bigger.  We’ve been called to just be obedient to his guidance.  He’s bigger than our perceived ideal circumstances and we have questions, but more than anything, we must trust in him.

Relinquishing control is not easy, but I’m confident that considering my own life is just a little blip on God’s screen, that He can see all things past, present and future and that there is a Divine purpose for him allowing you or me or any other person to go through anything.  Those situations are either good or bad character building or faith building.

What are you made of?  Do you struggle with doubt?  What kind of situations have challenged your own faith?

Jenn

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I am the worst blogger.  Ever.  

Updating and sharing…  I get so caught-up in doing irrelevant tasks like decorating the house (as I should have done years ago) and baking and currently researching to understand trends, that when I’m riding such a wave of momentum that I cannot stop or maybe I don’t stop?   Shortly after I completed the ‘making our house a home’ ordeal back in early April, I was able to again join a gym.  I’ve missed that daily habit for several years and when my MS improved back in ’05 and we were still in WA, I joined a gym and enlisted the help of a trainer who coincidentally also has MS, and provided me with a detailed program of cardio exercises, strength-building and toning exercises for me to keep some level of strength.  But, since moving, I really had not been in a gym in years.  I’m thankful most of the strength that I’d built remained during my gym absence and I was able to work the same major and minor muscle groups each day that I did earlier, so it took only a couple of weeks to get back into the habit in 2015.  So once again these activities became part of my current routine with lifting four days a week, and doing between 7-10 miles of cardio on my recumbent bike at home daily.

Another project that’s had my ongoing attention is getting our pool ready for Pool-Season.  During winter and early spring, there’s a minor level of maintenance required except after days of excessive wind and leaves blowing into the pool a few days each month.  We had a couple of weeks of windy weather in late April, which resulted in a slightly cloudy pool from all the dust and then the vacuüm stopped working, but was not clogged so I enlisted a professional to diagnose our pool’s problem.  I didn’t know what I didn’t know and I hate to claim ignorance, but there were a few steps that went ignored with our pool maintenance.   So after cleaning the filters and getting ALL the appropriate  equipment, with my newly acquired knowledge of ALL the steps, the pool is running just fine for the coming summer Pool-Season, which now that we’re consistently involved with our small group from church and they’re aware of our pool, there are definite expectations of us hosting pool-related barbecues/get-togethers.

Also relating to Pool-Season, my hair is short again.  Long hair gets hot on my neck and I gripe about it for a month, even with it pulled-up in a pony-tail and I finally give in to getting it cut.  It’ll grow back, unless I determine the shorter do is a keeper…  Another thing is for years, my sister has been on me to watch Mad Men and a couple of weeks ago, B and I tried it a third time and well…we’re finally in.  Jon Hamm is gorgeous, which has nothing to do with anything, but have you seen “Million Dollar Arm”?  He’s definitely also a DB in that film just like he is in MM…  And Peggy?  Why didn’t anyone catch-on to her being pregnant?  I called that long before she even started showing…  Speaking of pregnancy, my sister is due in August and we’re once again attempting to adopt, but this time is different so more on that later.

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Funny Friday

We’re already at the first Friday of February 2015!  I love a good parody vid and this “All About That Cake(and Chicken)” vid is pretty cute (tune based on Meghan Trainor’s “All About That Bass.”

The magnified size of a spider (in my head) might explain why I have this irrational fear of those eight-legged monsters…

What a great idea!!!

Lie detector test – but kids never lie!

Enjoy and have a fabulous weekend!

~Jenn

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Let’s talk about intentions

Merriam Webster’s website (2015) defines intention as a noun and “something you aim to do” or a “purpose.”   I believe that most people hope and aim to do their best and make intentions / commitments accordingly, therefore one might say that, “They had the best INTENTIONS.”  I occasionally hear and read emails from or about people admitting to an event or something they intended to do, but obviously failed since the word was in the past-tense.  Failed intentions are quickly given a pass because that wasn’t their, let’s say it together, INTENTION.  The word is over-used and loosely-used to excuse an over-commitment (lie) /  bad behavior or a failure.  Now I’m confident that there are a great many who will call me judgmental and say I lack tolerance of people’s situations and go on to say that I must be perfect, blah, blah blah…  I am far from perfection, but as a Christian, I try to do better than the day before and never over-commit.  I was once one of those obtuse folks who over-committed and later canceled last-minute because I had the best of intentions to participate in making some donated goodies, for example, or however I committed only to later realize I committed to an activity in which I aimed to participate, that I really never had any intention of being involved. Okay, now get over yourself because you wouldn’t be that defensive if you weren’t also guilty of this.

At one time, I intended / committed to make cookies every Sunday for our old church.  It was a small church and I needed to make only seven dozen cookies, which I often made every Saturday-night for the next morning.  Considering how much I love baking, it was a very small act of service, but there came a point a few months later after doing this every weekend when I became bored and would cancel because I just didn’t feel like baking.  Granted I had health issues that were becoming a contributing factor in this, but I should have resigned from my commitment ahead of time instead of being proud and stubborn.  I spoke with someone about this and Mickey pointed out to me that intentions can go either way – we either do what we committed to do or we intend to not follow-through.  When he further explained that it’s either/or  or pass/fail, my eyes were opened more widely because I think like many, we think our intentions outweigh outcomes.  But they do not.

About intentions in marriage…

Commitments / intentions should be as solid as your marriage vows and upheld.  You make a commitment to your spouse and you should do whatever you have to to make sure you do not fail.  Obviously, emergencies happen and must be accommodated, but a commitment remains a commitment.  Over recent months this has become somewhat of a thing in my marriage.  We’re working on 19 years together, but it’s been fairly consistent during only the last couple of years that B’s intentions to do something for me have some sort of ‘optional’ clause to not follow-through, perhaps?  It is a bit hurtful, I admit, but because he intended to follow-through, I think he thinks that he should receive points for the intention, I guess?  Now these broken commitments are small in the grand scheme and are not by any means divorce-worthy.  However, it remains hurtful that I might have become somewhat of a sacrifice, as he makes sure he follows-through with each commitment beyond us.  Perhaps he doesn’t want to appear a flake among coworkers or peers?

It’s interesting that people have such varying perspectives on intentions with spouses.   For one individual, an intention to a spouse is as good as a signed contract and they will move mountains to ensure the intention/commitment remains unbroken, but for another, who sees their spouse as ‘just my husband’ or ‘just my wife,’ they have given themselves the option to fail [Stop taking your spouse for granted!], when it should be the complete opposite as they should elevate their spouse’s importance instead of diminishing it.  Commitments to a spouse to fix an appliance or prepare a platter of goodies for coworkers or whatever the task is should be more important than commitments to non-spouses since you’re married to one and only work with or for another.  I’ve never understood those who say things like that because essentially, they have lessened their spouses role and therefore their spouse’s value.  Many years ago, I attended a work-related event with my husband and when his boss walked-up and asked who I was, I smiled and said, “I’m just B’s wife, Jennifer.”  B’s boss responded with, “Hmm, you mean you ARE his wife and not just his wife…”  That might have been eye-opening for me because there I was speaking condescendingly about myself.

Now, I must explain that my husband is NOT a monster.  I think at times his focus gets wrapped-up in whatever project has his attention and that he doesn’t see the looming ‘something’s got to give’ warning sign up ahead.  Unfortunately, that something is most often me because typically I am an understanding wife I attempt to be an understanding wife.  I suspect there might be a few others in a similar situation and am curious how you address a concern with your spouse or do you prefer to avoid it?  What is your best approach?  What is your coping-mechanism?   I like wine, which may or may not be relevant in this situation, but I believe that I just stumbled upon another blog-post idea…

roses are red

~Jenn

 

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Last weekend the Seahawks Won because of me

seahawk-superman-logo

I’m not so self-important to really think that I had anything to do with the Hawk’s win against the Packers last Sunday, but I do think God did allow them to win for me.  The last few years my faith has been inconsistent and consistently wavering.  At some point, I somehow started believing that blessings from God were  performance-based.  I know that my assessment of performance-based blessing is entirely false and thank God!  I’m thankful He doesn’t work like that because if that were true, there’s no possibility that I would ever or could ever be blessed.   Then I have to remind myself that I never deserved to be healed, but God healed the status of MS so I could walk again and not require a wheelchair full-time.  I also must keep reminding myself that God continues working in my life and I also never deserved any of these ongoing blessings.  So when I was watching the game last Sunday and saw the Hawks on their way to a loss in the last quarter, I kept saying to myself that my God is a God of miracles as He’s shown me with my health that miracles clearly happen.  I prayed for and asked God, while also believing in a miracle that the Seahawks could still win the game.

miracles

And they did.  Despite the great point deficit.  Congratulations, Seahawks and know I’m praying for another win against the Patriots next weekend!  GO HAWKS!   Regardless of whether God allowed the Seahawks to win for me or because of my tiny faith, God knew I needed a little encouragement and through that answer, God met me where I was in my wavering mustard seed faith.  Although I’m near the US gambling capital where I could have put a penny on Seattle to win, I’m confident that I wasn’t the only non-betting person praying for the Hawks to come out on top.  I also believe that God knew I desperately needed something to hold onto and for him to show me He’s still in control and that despite myself, He heard even my little prayer for an irrelevant football game outcome.  Thank you, Lord – I needed that.  I know that positive answer helped to confirm and re-energize my faith in an unseen God who WILL move us back to WA, but I must be patient in also having faith in his perfect timing. Thank you again, Lord Jesus!

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~ Jenn

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