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I am a work in progress…
Posted by crusaderjennblog in adoption, Babies, Bible, debateable, Faith, Faith in the Midst of Illness, family, Funny, Grace, health, Humor, in the kitchen, Inspiration, invisible disease, Jesus, life, lifestyle, Living with Living with Multiple Sclerosis, Living with MS, Living with Multiple Sclerosis, Maintaining Faith, Marriage Encouragement, Mommy’s musings, MS, MS Fight Club, Nervous System, Neurological Conditions, prayer, Relapsing Remitting, Relapsing Remitting MS, Stress and MS, Therapeutic House-pets, Uncategorized, Women with MS on April 3, 2021
I was blogging with somewhat of a purpose, but then I started analyzing and reanalyzing every stinking thing I do and do not do. I feel like a mouse trapped in a maze because I have been all over the map trying to figure out what my point is and answer the million dollar question of why do I do what I do? I’ve ultimately determined that my blog is for me. When I began blogging some years ago. I had hopes illusions of reaching a massive following for those with MS and/or their care-partners and even more of those who were interested in knowing more about being a Christ-follower in the middle of battling a debilitating illness and trying to mainfain faith and trust that God was still good when my Multiple Sclerosis was spiraling out of control.
And it was. I went from being for the most part able-bodied and independent to having to learn to self-catheterize when I couldn’t empty my bladder on my own. Using a cane became obsolete when I had to graduate to using a walker and finally upgrade to a wheelchair all within six months … and back then in October 2001 when I was struggling in my position and could no longer do my job as a consumer loan officer, my neuroligist said I likely wouldn’t see my 30th birthday, which was still some years away. I’m briefly explaining all that to get around to my point that I am going to blog for me because I enjoy writing. If anyone follows my non-nonsensical gibberish or rantings that get tossed around in my mind, then sure, I hope you enjoy yourself, are encouraged or at the least, can smile at something said, but don’t expect anything Nobel prize worthy. I’m writing for myself as it can be therapeutic. My story is not debateable because it is MY experience and I will not apologize for MY convictions. Consider that fair-warning.
As a Christian I do get mad, upset or annoyed when unexpected circumstances or events (like bad health) put a hiccup in MY plans. Really? Indeed. Because I am a control-feak extrordinaire, but am always trying to give up my own illusions of what I want and instead work toward fulfilling God’s plan for my life. I am a sinner. That’s not a badge, just a recognition that I am so far from being perfect. I have made some massive mistakes that years later, I still struggle with forgiving myself. I am a Christ-follower. There is a difference because many label themselves as Christians, but they don’t have a relationship with God, pray etc.
Be confident that that is not a judgement of anyone because only God knows an individual’s heart. I am actively seeking God’s will for my life on a continual basis and although I mess-up many times every day, I try to stay on-track. I have a lot of Biblical head kowledge, but am trying to get myself to having more heart knowledge. That is not a pat on my back for ‘intentions’ because intentions do NOT count or provide any points for scoring if that’s how you grade yourself. 2000 years later, Jesus still remains the only perfect human. Perfection is impossble, but God is always at work in people’s lives to refine us into who we’re supposed to be for his purposes.
It is well with my soul
Posted by crusaderjennblog in Faith, Inspiration, Living with MS on July 22, 2015
I love the newer version of this old hymn and God has continued to use this song to keep me and my thoughts in-check because at times, and I’ll be honest, I’ve gone from zero negativity to Defcon Red in milliseconds, for which there is really no valid reason. Those reasons have been ridiculous and those worries have been entirely unfounded. The “what if?” game and I have been on again, off again roommates and I still have to work at kicking-out the unwanted guest when they attempt to argue, sit down and makes themselves at home for an extended stay as they readily rehash what’s wrong in my life, when all I must do is counter-hash everything that is right. Here is Matt Redman’s version of “It Is Well With My Soul.”
I have been so very blessed! In 2001 my MS was on a fast-track quickly retrogressing and I became dependent upon using a wheelchair full-time. 2015 marks 10 years since I regained feeling in my legs, was healed and able to again walk and not require the assistance of a wheelchair. Thank you, Lord.
My Dad was diagnosed with cancer a little over a year ago in 2014. With each quarterly exam, the cancer was confirmed with the understanding that because it was a slow-growing cancer, nothing was an emergency, but it would need to be monitored. My Dad’s quarterly cancer check-up and biopsy in June came back, “No cancer.” As in with all the many many samples they extracted, there was NO TRACE of it. Thank you, Lord.
Our oldest kitty Thor, died at end of April- just a couple of months ago. He was with us 18 years and he lived a pretty long and happy life filled with chasing string and consistent purrs. We adopted Thor shortly after B and I married. Our youngest kitty, Zephyr was diagnosed with kidney stones last winter and because of the process of going under the knife, we’ve hesitated to get him the surgery. With our loss of Thor, the Lord knew we needed some comfort and allowed Zephyr to be instrumental in providing that with lots of loves and cuddles as we mourned, but we remained worried that his condition would also take him from us too soon. Zephyr is now stone-free. Thank you, Lord.
My husband had a bad cough for about a year and the doctor said it was fine. It went away and then the cough started again and I kept reminding B to go to his doctor to see what was going on. They did a full exam and also ran an x-ray this time around. The x-ray was clear and everything is absolutely fine with his lungs except that the doc put him on an allergy regimen and now that painful cough is almost completely gone. Thank you, Lord.
I doubt that there are any other Christians out there who have ever been able to relate to being control-freaks or worrying excessively. What? You might resemble being controlling? You worry about stuff too? Then you can relate… I guess that somehow I believed in my very misguided perception is that if I worried needlessly about anything big or small, that things will get better or something ridiculous like that. I am thankful that God has a plan and that through my worries, He’s waited patiently for me to step-back, give him those reigns for my inner control-freak extraordinaire and just let him be God. It’s a process and I am an active work-in-progress with needing to remind myself daily that, “‘He’s got this, Jenn.” It’s very silly the amount of control that I perceive I have. I believe that the above situations served for no other purpose than to get my faith on-track. But then, it may not be all about me, so perhaps my perspective is selfish in that the listed situations were to grow my faith, when those also could have also served to grow my husband’s faith, my Dad faith, my Mom’s faith and / or my Sister’s faith…
As B and I have again felt led to pursue adoption, our faith has very much been stretched. It’s far from ideal circumstances since we’re older and have less money than the first time we attempted to adopt in ’07, but God’s bigger. We’ve been called to just be obedient to his guidance. He’s bigger than our perceived ideal circumstances and we have questions, but more than anything, we must trust in him.
Relinquishing control is not easy, but I’m confident that considering my own life is just a little blip on God’s screen, that He can see all things past, present and future and that there is a Divine purpose for him allowing you or me or any other person to go through anything. Those situations are either good or bad character building or faith building.
What are you made of? Do you struggle with doubt? What kind of situations have challenged your own faith?
Jenn
I am the worst blogger. Ever.
Posted by crusaderjennblog in Faith, family, health, Inspiration, life, marriage, MS on May 12, 2015
Updating and sharing… I get so caught-up in doing irrelevant tasks like decorating the house (as I should have done years ago) and baking and currently researching to understand trends, that when I’m riding such a wave of momentum that I cannot stop or maybe I don’t stop? Shortly after I completed the ‘making our house a home’ ordeal back in early April, I was able to again join a gym. I’ve missed that daily habit for several years and when my MS improved back in ’05 and we were still in WA, I joined a gym and enlisted the help of a trainer who coincidentally also has MS, and provided me with a detailed program of cardio exercises, strength-building and toning exercises for me to keep some level of strength. But, since moving, I really had not been in a gym in years. I’m thankful most of the strength that I’d built remained during my gym absence and I was able to work the same major and minor muscle groups each day that I did earlier, so it took only a couple of weeks to get back into the habit in 2015. So once again these activities became part of my current routine with lifting four days a week, and doing between 7-10 miles of cardio on my recumbent bike at home daily.
Another project that’s had my ongoing attention is getting our pool ready for Pool-Season. During winter and early spring, there’s a minor level of maintenance required except after days of excessive wind and leaves blowing into the pool a few days each month. We had a couple of weeks of windy weather in late April, which resulted in a slightly cloudy pool from all the dust and then the vacuüm stopped working, but was not clogged so I enlisted a professional to diagnose our pool’s problem. I didn’t know what I didn’t know and I hate to claim ignorance, but there were a few steps that went ignored with our pool maintenance. So after cleaning the filters and getting ALL the appropriate equipment, with my newly acquired knowledge of ALL the steps, the pool is running just fine for the coming summer Pool-Season, which now that we’re consistently involved with our small group from church and they’re aware of our pool, there are definite expectations of us hosting pool-related barbecues/get-togethers.
Also relating to Pool-Season, my hair is short again. Long hair gets hot on my neck and I gripe about it for a month, even with it pulled-up in a pony-tail and I finally give in to getting it cut. It’ll grow back, unless I determine the shorter do is a keeper… Another thing is for years, my sister has been on me to watch Mad Men and a couple of weeks ago, B and I tried it a third time and well…we’re finally in. Jon Hamm is gorgeous, which has nothing to do with anything, but have you seen “Million Dollar Arm”? He’s definitely also a DB in that film just like he is in MM… And Peggy? Why didn’t anyone catch-on to her being pregnant? I called that long before she even started showing… Speaking of pregnancy, my sister is due in August and we’re once again attempting to adopt, but this time is different so more on that later.
Let’s talk about intentions
Posted by crusaderjennblog in Faith, marriage on February 5, 2015
Merriam Webster’s website (2015) defines intention as a noun and “something you aim to do” or a “purpose.” I believe that most people hope and aim to do their best and make intentions / commitments accordingly, therefore one might say that, “They had the best INTENTIONS.” I occasionally hear and read emails from or about people admitting to an event or something they intended to do, but obviously failed since the word was in the past-tense. Failed intentions are quickly given a pass because that wasn’t their, let’s say it together, INTENTION. The word is over-used and loosely-used to excuse an over-commitment (lie) / bad behavior or a failure. Now I’m confident that there are a great many who will call me judgmental and say I lack tolerance of people’s situations and go on to say that I must be perfect, blah, blah blah… I am far from perfection, but as a Christian, I try to do better than the day before and never over-commit. I was once one of those obtuse folks who over-committed and later canceled last-minute because I had the best of intentions to participate in making some donated goodies, for example, or however I committed only to later realize I committed to an activity in which I aimed to participate, that I really never had any intention of being involved. Okay, now get over yourself because you wouldn’t be that defensive if you weren’t also guilty of this.
At one time, I intended / committed to make cookies every Sunday for our old church. It was a small church and I needed to make only seven dozen cookies, which I often made every Saturday-night for the next morning. Considering how much I love baking, it was a very small act of service, but there came a point a few months later after doing this every weekend when I became bored and would cancel because I just didn’t feel like baking. Granted I had health issues that were becoming a contributing factor in this, but I should have resigned from my commitment ahead of time instead of being proud and stubborn. I spoke with someone about this and Mickey pointed out to me that intentions can go either way – we either do what we committed to do or we intend to not follow-through. When he further explained that it’s either/or or pass/fail, my eyes were opened more widely because I think like many, we think our intentions outweigh outcomes. But they do not.
About intentions in marriage…
Commitments / intentions should be as solid as your marriage vows and upheld. You make a commitment to your spouse and you should do whatever you have to to make sure you do not fail. Obviously, emergencies happen and must be accommodated, but a commitment remains a commitment. Over recent months this has become somewhat of a thing in my marriage. We’re working on 19 years together, but it’s been fairly consistent during only the last couple of years that B’s intentions to do something for me have some sort of ‘optional’ clause to not follow-through, perhaps? It is a bit hurtful, I admit, but because he intended to follow-through, I think he thinks that he should receive points for the intention, I guess? Now these broken commitments are small in the grand scheme and are not by any means divorce-worthy. However, it remains hurtful that I might have become somewhat of a sacrifice, as he makes sure he follows-through with each commitment beyond us. Perhaps he doesn’t want to appear a flake among coworkers or peers?
It’s interesting that people have such varying perspectives on intentions with spouses. For one individual, an intention to a spouse is as good as a signed contract and they will move mountains to ensure the intention/commitment remains unbroken, but for another, who sees their spouse as ‘just my husband’ or ‘just my wife,’ they have given themselves the option to fail [Stop taking your spouse for granted!], when it should be the complete opposite as they should elevate their spouse’s importance instead of diminishing it. Commitments to a spouse to fix an appliance or prepare a platter of goodies for coworkers or whatever the task is should be more important than commitments to non-spouses since you’re married to one and only work with or for another. I’ve never understood those who say things like that because essentially, they have lessened their spouses role and therefore their spouse’s value. Many years ago, I attended a work-related event with my husband and when his boss walked-up and asked who I was, I smiled and said, “I’m just B’s wife, Jennifer.” B’s boss responded with, “Hmm, you mean you ARE his wife and not just his wife…” That might have been eye-opening for me because there I was speaking condescendingly about myself.
Now, I must explain that my husband is NOT a monster. I think at times his focus gets wrapped-up in whatever project has his attention and that he doesn’t see the looming ‘something’s got to give’ warning sign up ahead. Unfortunately, that something is most often me because typically I am an understanding wife I attempt to be an understanding wife. I suspect there might be a few others in a similar situation and am curious how you address a concern with your spouse or do you prefer to avoid it? What is your best approach? What is your coping-mechanism? I like wine, which may or may not be relevant in this situation, but I believe that I just stumbled upon another blog-post idea…
~Jenn
What I learned from football…
Posted by crusaderjennblog in family, Football on February 3, 2015
…is that nearly everyone is a coach [Monday Morning Quarterbacks, you know who you are]. This is my final take-away from watching the entire season of games. Last Sunday’s Super Bowl ended my first complete NFL season of watching, following and learning. I’m obviously far from being an expert like you, but are not most of us who lack the history of EVER being an NFL coach? I posted to Facebook immediately following the Hawks loss to New England, something short – ‘Great game Hawks and Congrats Patriots,’ but couldn’t believe the feed posted relating to the Hawk’s losing the big game that demanded immediate termination of Pete Carroll. Those same individuals (guilty of Monday Morning quarterbacking) generously gave away what other play shoulda (should have) happened that coulda (could have) and woulda (would have) guaranteed a repeat of the Hawks winning another championship game last Sunday. [Apparently, I am surrounded by seers and clairvoyants.] Do you Monday Morning quarterbacks really think Coach Carroll failed to consider ALL the play options? It would seem a great many of you non-coaching experts like to coach from the sidelines of the social network. And since you are clearly clairvoyant, have some confidence in your abilities to foresee outcomes while also having the cojones to put your ability to use publicly so you can gain some credibility and so we can avoid the shoulda, coulda, woulda conversations in the future. Capisce? I’m just another fan (not a Monday morning or any other day of the week quarterback), who suggests that perhaps your lack of confidence in your own team assessments is more of an indication that you’re symptomatic for possibly being passive aggressive since you’re a heckler style of coach, rather than taking your team management and play concerns directly to the coach personally…
So should I suggest, “Shame on Mr. Carroll for failing to consider ALL the social network suggestions?” No, but then, I also really doubt that Pete Carroll suffers from any level of short-shortsightedness or he wouldn’t be allowed to continue coaching. Right? In several articles, Coach Carroll took full responsibility for making the call on what final play the Seahawks attempted. “I made the decision,” Carroll said. “I said, ‘Throw the ball,’ and we went with the play that we thought would give us a chance to get in the end zone. We had great match ups for the call that we made, and it didn’t work out. They made a better play than we did.” (O’Connor, ESPN, 2015) And Pete Carroll has the experience and credibility required as a paid coach to make that determination of which play to execute and when. The play didn’t win the game and that was disappointing, but the majority of us were NOT on the field next to him to offer our not-so-news-worthy insight and therefore, failed to see the ENTIRE picture of what lead to Coach Carroll’s determination.
I noticed that In addition to you Monday morning quarterbacks, apparently all you wannabe coaches are really coaches masquerading in a number of day-jobs, like entrepreneurs or working for ‘the man.’ Who would have thought that there are so many of these professionals who are really coaches in-disguise? But even more surprising was that some of these individuals have the time to successfully do so many jobs – your paid position, your football analysis position and then also act as an unpaid wannabe coach – in addition to having families. Wow! Y’all are setting the bar pretty high for simpletons like me who just want to be entertained watching a fantastic team who wants to win a game, but then I’m really just another fan who believes that those who are in the actual position of Coach – like Pete Carroll – he probably has the required qualifications to…well…Coach. So I propose instead of coaching from the sidelines like a heckler, confront the Hawk’s GM John Schneider and prove that you’re more qualified than the team’s current coach because your coaching expertise is clearly under-utilized as your wannabe coaching from a social network’s sidelines might indicate. Best of luck obtaining the position and I’ll look for your name on next season’s roster. Go Hawks!
If your ability as a clairvoyant suggested the majority of this was going to be sarcastic, congratulation for reading the obvious.
Do you also find Monday morning quarterbacks annoying? Please explain.
~Jenn
Product review – we have a Bunn verdict
Posted by crusaderjennblog in family, life on January 22, 2015
Good morning! In December, I blogged about receiving a fabulous Keurig for Christmas from my folks and then we promptly returned it to Costco when the water pump failed less than a week later. We did some research and ordered through a commercial restaurant supplier a Bunn K-cup maker when we found the Bunn maintained much higher ratings than the our late Keurig. B and I received the Bunn shipment at the beginning of January and after many uses, I guess I’m here to recommend the device. Bottom line – the Bunn K-cup coffee-maker works and continues to function properly going on three weeks now. The Bunn might be considered a commercial device and so the attractive nature is nonexistent with the practicality being the more important issue as the Bunn continues to function as it’s supposed to. You can see in the picture that there’s is nothing stylish about the practical Bunn that says, “Fun!” But it works. And the speed at which it makes a cup of coffee is about 100 seconds from loading 1 of 4 appropriate ready trays (for K-cup/tea-bag/water/fresh grounds), to the push of the start button to the final pour from the maker into the coffee-cup, to the stir-in of 1/2 and 1/2 before taking a first sip and combined with a slice of yesterday’s fresh Pumpkin Bread… Not too shabby. That’ll do pig – oops sorry, wrong movie, Jenn!
I realize my one little complaint about the Bunn is going to come across trivial, but I’m saying it anyway. I must refill the Bunn’s shallow water reservoir for every cup I wish to make. Every cup! Yes, I was a little spoiled with the Bunn’s late predecessor’s huge water reservoir and yes, I realize that factor would be considered a very minor inconvenience. Because it is a very minor inconvenience, but it remains an inconvenience nonetheless. However, I will still recommend the Bunn with 5 out of 5 stars.
~Jenn





